Recent content by Eponine

Hello Everyone, Thank you so much for your kind words. They are getting me and my family through a very hard time. This forum means alot to me and I know it even made my dad's last months of life better with all the great advice I picked up from everyone. Thank you again, Susan

Hello Everyone, I just want to thank EVERYONE on these forums for all your advice, suggestions and prayers. My dad passed away yesterday at 12:42 pm. He was diagnosed back in July and it's been a long road for everyone, Thank you again, Susan

Sara06, I'm sorry about the passing of your mother. Thank you for the inspiration to stay strong. I will! Susan

Thanks Jodie and everyone. He's holding his own right now but I do notice daily little things. Each day it seems he is slurring his words more and more and it's harder for me to understand him. I just hope he doesn't suffer (anymore than he is now). All I can say is that this disease...

Thanks for all the advice. My dad is totally with it. Actually, it surprises me that he remembers exactly where everything is located in the house (he lives with me) eventhough he can't get upstairs anymore. I'll say it's not there and he says look again and there it is! My sister has power...

Thanks for the response. He is 74. I was surprised how quickly everything has happened. The one thing he does have is an appetite. He eating/chewing has slowed considerably but he still enjoys food, so I give him whatever he wants. I wish you all the best. I can't even imagine having to...

Hello, My dad was diagnosed with ALS back in July 2006. Since then, he as degressed fast. Last December we were all at Disney enjoying a family vacation. In late Jan/early Feb, he started losing mobility in his left arm. Then by late spring, he was walking with a limp. Two prior to...

Hello, My dad has ALS and recently has been having a problem with this. He has lost the movement in both arms and legas are very, very weak. He can bearly walk 1 foot. For him, his legs will shake throughout the day ranging anywhere from a few seconds to 30 seconds. The other night, when...

Hi Laura, As mentioned, it's tough to give a time line. My dad was diagnosed in July and is currently in a wheelchair most of the time. Since January of this year, he has gone downhill fast. First it was his left arm, then slowly his right arm, now his legs. Most it the past 2 months...

Hi angelbaby'smom Welcome first of all. I'm new here too. I'm a single 40 year old and my dad lives with me. We found out in July and everything is still new to us too. He has declined too this year. I don't know how much help I can be but if you need to vent, please feel free to do so! I...

Hello! Thanks for the responses. Yes, I understand that the pills are expensive and it then adds onto the cost down the line but the problem is, he is on other medication that now must come out of our pockets. The insurance companies are always making money, trust me, I highly doubt they...

Hello Everyone, I just need to get this off my chest. I went to pick up my Dad's prescription for Riultek last night. I get there, the pharmacist says "wow, this is expenisve". I said I know that because it's a special order, etc. I told him that with insurance it's around $30.00. (This...

Hello Everyone, Thank you so much for all your information. Al, that comment was funny :-D We all have to add some humor to get through this. Plus, I told my Dad it's not a convenient time for him to die yet, I have tickets to some Broadway shows coming up, then the holidays. I told him...

Hello, My dad was diagnosed with ALS in July. It's been a rough couple of months. He has gone downhill quickly. He is in a wheelchair more and more (he is going for a wheelchair assessment at the end of the month for an electric one) We went to the Lahey Clinic and they reconfirmed the...

Hi Maureen, Thank you for responding. Yes, I am trying to cherish each moment I have. Each day I wake up knowing I'll never get the day prior back and we are possbily one day closer. Thank you for the care and support (and to everyone else too!)