Thank you for the replies.
I know Music67 not the most common subject to be discussing on a forum :-)
We are using Reliv and not sure why it's affecting his bowel movement. I wonder if it could be because of mixing the product with Water rather than Soy milk or the formula for the Peg? The...
Thanks Glenn.
Yeah my Dad is also 100% on the peg too. Just hoping this can help him in some way if not reverse everything like Mike McDuff.
It's so hard to see my Dad like this and so down all the time. My Nan (Dad's Mum) has just passed away last week as well.
God bless to everyone and you...
Hi Sean,
We have the Lunasin C capsules & Now being delivered tomorrow. Just got order the Provantage but it is not available in UK so going have to ship it to a friend in LA or Canada who can then ship it to us.
Just wanted to check that it's 12 capsules 2 scoops of Provantage and 3 scoops of...
Hi Guys
Thanks for your replies.
I have always told him and my Mum that he needs to avoid falls. He is so stubborn and rejects any additional support but soon I suppose he will have no choice as things seem to be progressing faster. I can't believe the difference since November when he was...
Hi everyone,
It's been a couple of months since I have last posted and it's been a very tough few months since my Dad was diagnosed.
He has now started to become very weak and his speech is very slurred and has fell 3 times now in recent weeks which luckily haven't been serious and hasn't...
Hi all,
Hopefully there will be some positive news to come from this. If hyperphetically this treatment gets fast tracked what does this mean for those based in the UK?
Is there anything we can do from the UK to help fast track this treatment?
Take Care x
Hi all
Just wondering is there anyone who is actively doing this and what has your experience been like since starting?
Also hoping the GM604 gets approved asap as it looks very promising!
Hi Ken
Thanks for you support.
I have briefly looked at the Dianne Protocol and looks positive. What does this involve and has anyone on here tried it?
Thanks.
Thanks Nikki.
I don't think he suffers from twitches but he does have fascilations.
My concerns are:
1) if he waits until after Xmas then what if the symptoms progress when potentially the Riluzole could of slowed it down.
2) if he does have it now, he is currently able to walk but has to...
Thank you everyone for you support!
We have just had the Neuro Nurse come for the 2nd visit since the diagnosis.
She has brought the Riluzole with her but my Dad is unsure whether to start taking now or in a couple of weeks as he is due to go away for a couple of days with my Mum and with Xmas...
Hi all,
Thank you all for your kind words and advice.
This is still fresh in our minds and we are all still letting it sink in.
I think a cure is more of wishing for a miracle but I am hopeful as I have read some very positive stories about the disease burning out etc.
I am seeking ways in...
Hello to all,
My Father was diagnosed last Monday and it had been a very tough week for us all.
My Father is 54 and has always been a fit and healthy person and never smoked, eat well, drank socially and always went for a jog, played football and Golf so cannot understand how this has...