Recent content by emp1217

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    Baclofen experience?

    My sister had her second opinion yesterday and we heard the dreaded words again. The new DR recommended she try baclofen. She's worried about the sedative aspect and isn't sure it's necessary yet she only has spasms in her handsbut spasticity in her right leg. Any advice or experience?
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    Sister given probable ALS diagnosis

    second opinion agreed ALS.
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    Sister given probable ALS diagnosis

    Sister has a second opinion appt tomorrow with the local ALS specialist. Hoping for good news, but preparing for the worst.
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    Sister given probable ALS diagnosis

    Thank you for the advice gooseberry! I will definitely pass that along.
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    Sister given probable ALS diagnosis

    Thanks all. I'm always telling my patients to take it one day at a time, or even one moment if they need it. Doing it is so much harder. My sister got in touch with the ALS association here, which will be hugely helpful. We are having some trouble getting her into see the ALS specialist here...
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    Sister given probable ALS diagnosis

    Hi all. My sister was just diagnosed with probable ALS at the Mayo Clinic, and my family is reeling from the news. She is 28 with 3 children, and this was not at all the diagnosis we were expecting. She had already been cleared of ALS/PLS by her local neurologist, but this was what she left...
    • emp1217
    • Thread
    • als children clinic diagnosed diagnosis emg family neurologist pain pls second opinion support technology wanted
    • Replies: 13
    • Forum: Newly diagnosed
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