Recent content by emjoi

Strange to think that Patent law might push at least the makers of Rilutek to work harder to come up with a better drug.

It was an MP3 player that made me realize that something was up with my dad. I bought him one, and then regretted it when I watched how much trouble he had with the little buttons... at the time I thought "Oh, my dad is getting old", but obviously it turned out to be more than that. He stuck in...

I do agree that the best thing you can do it decide what your attitude will be. Personally, and perhaps people will be annoyed at me for it, I don't think your attitude will affect the progression of the sickness, but it will vastly affect how your life and the life of those around you proceeds...

*Imagining mice with teeny espresso cups*

Can I ask, what is the special nature of Stephen's ALS? Why did it stabilize, and are there many other people who have a similar condition?

Yeah too many "maybes". Most people by the time they are 60 have had a few other health or injury crises, large or small. That's just something that comes along with being over 60. So it's easy to look back and say "Maybe it was this". There was some statistic or urban myth floating about...

It's freaky to think that in the tens of thousands of years man has walked the earth, my dad happened to fall to this damn thing maybe 5 years before a cure is figured out. It's like getting shot on the last day of World War 2.

I'll just throw in that "Strength" when confronted with news like this has nothing to do with physical strength or whether you are a man or woman or anything like that. There's a fair chance that she will surprise you with her reaction. Sooner or later the bad news will have to come out...

No. It doesn't work that way. Eventually someone, after years of published research, will do trials with the backing of an internationally known hospital or research centre. And then the trials will be published and there will be big announcements all over the place. It's not going to happen...

My dad died of ALS a year and a half ago. I went through a year of being completely convinced that I had it too. I obviously don't because nothing developed. I recently discovered that both my mother and my brother went through phases of thinking they had the disease. It's a disease that...

No, don't hold down the SHIFT key. If you want to be technically accurate, try CTRL - and CTRL =

As for the Question.... Okay, so you know you are just the victim of random crap. Logically that makes sense. Just in your heart, you wish you could rewind the tape, do things differently, take a different path. Everyone wishes that... unsay cruel words said to someone we love, say "Yes" to...

Yeah. I've got agree with this. You have a choice how things proceed from here. Positive or Negative. This sickness can wreck your family, if you choose that path. Anger and guilt and blame and frustration. Or it can help bind your family together. Bring them together to spend time with you...

I know my father at times wondered if he had done something wrong and God was punishing him. Considering he was an extremely kindhearted man, and whatever failures he may have had were minor in the Grand Scheme of things. But he also had a much better philosophy of "It Is What It Is", which I...

But that's the thing. There really isn't much of a choice. To refuse the peg, is to say "It ends here". If you wish to be with your family a while longer, then when the time comes it's a path you have to take, no matter how you feel about it. Sorry for being blunt.