Recent content by elengeniero

Hi all, My name is Ariel. I'm 37, male from California. My mother was DX with ALS at 50 (10 years ago). She's still alive but locked in and on a vent. Shortly after her DX I started experiencing whole body fasciculations. I told my Dr about it and my mom's DX. He did a simple reflex and strength...

Laurie, Thank you so much. That is a huge help. Does the general public have access to the IVUN directory, or do you need to be in the nursing field? Thanks, Ariel

Hi fellow CALS, My name is Ariel. It's been many years since I've posted on this forum but our family has determined we need some help form those that might have more experience than us. My mother has had ALS for 10 years now. She's completely paralyzed except for eyes and mouth (which have...