Recent content by elb5003

Haha ok maybe I'm just delusional. I thought I posted something else, sorry!

It's ok! I figured you hadn't seen it. Yes and I also got even more results. They did an MRI of his spine and they found something on the left side of his L4 L5 s1 but they said this can't explain why he's having all the symptoms on the right side as well.

Why are my posts not showing up? It said a moderator needed to approve them, but that was yesterday in the middle of the day.

Yeah he is looking into mass general. For right now we have an appointment at UM with Dr. Benatar for the beginning of September.

Mediasmart sorry didn't see your response before! My dad originally saw a neuro at the Cleveland clinic in south fl. He had a really bad experience there so I think he'd be hesitant. Do you have personal experience with them?

Thank you Nikki and max! He is willing to travel anywhere really. He just wants to have the best doctors around him. Dusty, the neuro did an MRI with contrast right after the EMG. He got a call today and they said there is something on the left part of his Spine that could be causing the...

Thank you Atsugi, but my parents live in the Fort Lauderdale area. Nikki, you are saying the higher number the worse. So if it is ALS. It would be typical for those numbers to get higher? As of right now my Dad is looking into which ALS clinic he should go to. He doesn't mind traveling...

Thanks Nikki! I'm sorry to hear that wright has moved on. I never had a chance to interact with him, but I have read a number of his posts, and he was ways very helpful. That link helped but what I'm having trouble with is what the numbers mean is 1+ on the low end and then as it goes up means...

Haha not sure what uefi or Nikon is? Nikon, like the camera? As far as the neuro goes, I've been wanting him in an ALS clinic this whole time, but there are long waits so he went to this Nero in the meantime. I'm not looking for anyone here to diagnose him. I would just like to understand what...

Well for those that have seen my posts in the past , my dad went to a new neurologist and she did a new EMG. She suspects ALS, and she is finding suspicion in only 2 regions at this time so she can't make a definite diagnosis. She is referring my dad to an ALS clinic. I was wondering if...

Hi dusty I was wondering if there was a way I can post something privately to you? I don't see that option here.

Yeah I'm very happy he is getting the new EMG! Hopefully it can answer some of these questions. He is in south Florida. Does anyone have any recommendations for a good neuro?

Also he informed me that there were mri's done all down his spine and brain. They found nothing out of the ordinary in his MRI's.

Dusty, Ok I'm trying to get a full understanding here. They are saying he does have weakness in his right ankle/foot. The neuro is saying he is scoring a 4-/5 on his strength test. When you say bilateral, meaning it's spreading bi laterally to other limbs? He has no clinical weakness anywhere...

I'm so sorry you even have to go through this. :( I hope you have an answer soon.