Recent content by Elaine Ramos

  1. Elaine Ramos

    Have any Canadian PALS been prescribed Lithium?

    Al, what if he is taking creatine too? can he also take lithium? Elaine
  2. Elaine Ramos

    PAL forgets what happens and blames me

    Does anyone experience this? My husband has bulbar onset of ALS for 2 years now. He has a lot of pain and takes several pain killers throughout the day. He is generally himself, but sometimes he forgets what we spoke about. But he also sometimes accuses me of doing things without his...
  3. Elaine Ramos

    Have any Canadian PALS been prescribed Lithium?

    My husband has ALS and wants to take lithium but our ALS Clinic doc won't prescribe it because of its toxicity. My husband said that I'm dying anyway, what do I have to loose? I wonder if the ALS doc won't prescribe, then who can?
  4. Elaine Ramos

    hello, husband with ALS

    Hi Judy, I just read your message. My husband gets Botox type shots from his ALS clinic doctor for saliva. He takes Lorazepam drops for the choking sensation when the throat muscles cramp up. Is he using a Vpap machine while he is at home? This helps with breathing and not invasive. My...
  5. Elaine Ramos

    am i doing too much?

    my husband has bulbar onset diagnosed 2 yrs ago. he has 30%fvc and close respiratory failure. I kinda think he could possibly die before he loses use of his extremities. it sounds like your father did. docs want you to think he won't die until he chooses and that would be when he is fully...
  6. Elaine Ramos

    caregiver for husband/I have bad dreams

    Hi All, New to this forum. I feel overwhelmed with caregiving for husband diagnosed to 2 years ago with bulbar onset. He has FVC 30% and close to respiratory failure in the next few months. We've been married 16 yrs. He is 48 and I am 39. We have 2 girls, 11 and 14. He wants to get a vent...
  7. Elaine Ramos

    pain and ALS

    my husband has als and the only real pain he has is in his back from a past fall that only became apparent as the atrophy began. Otherwise, he wouldn't really be in pain.
Back
Top