Recent content by EJTUNow

Alsuntangled requesting data on PALS who have tried propofol. Please send to [email protected] or fax to 919 668-2901. Quote: Good morning Dr Bedlak, I had 25 mg on June 4, 2013. No discernible benefit. best, Ed BTW We are still hard at work attempting to help every PALS

Please consider sending your version of this snail mail to your Congress people. This is ALS month. We all need to become more like the HIV activists. if possible use personal stationary, tell us if you decide to participate. Please spread the word on your social media.

send me your email address [email protected] We will send you info.

Updated list of known patients who reported significant improvements after propofol anesthesia. Patient: Cypress Improvements: increased dexterity, better speech and swallowing Dose: 1100 mg When noticed: same day Duration: noticeable regress after day 9 Patient: Jason Improvements: normal pft...

I am on the ALSTUN (ALS treat us now) steering committee, we invite you to ask us for more information. tell us if you’d like to join one of our teleconference calls. help us help you. http://treatalsnow.org/ e-mail address is [email protected] or [email protected] best to you, Ed...

I am on the ALSTUN (ALS treat us now) steering committee, we invite you to ask us for more information. tell us if you’d like to join one of our teleconference calls. help us help you. http://treatalsnow.org/ e-mail address is [email protected] or [email protected] best to you, Ed

I am on the ALSTUN (ALS treat us now) steering committee, we invite you to ask us for more information. tell us if you’d like to join one of our teleconference calls. help us help you. http://treatalsnow.org/ e-mail address is [email protected] or [email protected] best to you, Ed

I am on the ALSTUN (ALS treat us now) steering committee, we invite you to ask us for more information. tell us if you’d like to join one of our teleconference calls. help us help you. http://treatalsnow.org/ e-mail address is [email protected] or [email protected] best to you, Ed

I am on the ALSTUN (ALS treat us now) steering committee, we invite you to ask us for more information. tell us if you’d like to join one of our teleconference calls. help us help you. http://treatalsnow.org/ e-mail address is [email protected] or [email protected] best to you, Ed

ALTSUN has left over material from the Washington DC meeting that we are happy to send to Walk sponsors. They include handouts, treatment information, signs and banners, stickers. See below: https://docs.google.com/document/d/1E_xqsbAv5qza3qlWMnchmnZkF7y6jNcHl3FC3wacSIQ/edit...

we have ALSTUN posters, handouts, stickers available. Just let us know what you need. https://docs.google.com/document/d/1E_xqsbAv5qza3qlWMnchmnZkF7y6jNcHl3FC3wacSIQ/edit one of several designs: https://drive.google.com/?tab=mo&authuser=0#my-drive menu of links to many more...

Re posting: "Specific Improvements For Me: Improvement in right sided swallowing. Can eat and drink currently without coughing every single time I do either (which was the case before my biopsy). Also, a feeling of more right sided strength which is more subtle than my swallowing improvement...

"I hate to think what else is ahead" Here is what I think is ahead https://www.alsforums.com/forum/general-discussion-about-als-mnd/22145-propofol-therapeutic.html

"There is a topic heating up on the potential of propofol as a therapeutic for ALS. Since this is not something that can be a DIY (Do it yourself) trial, I would like to ask anyone who is going to have a surgical procedure done and propofol is used as the anethsetic (i.e. feeding tube...

Kenopaullone? Anyone familiar with this: Stem Cell Screen Points to ALS Disease Target It sounds very interesting.