Recent content by ejb24d2

My mother has upper limb onset. She is now unable to move her arms. She is struggling at nighttime to get comfortable and stay asleep. Her left arm specifically gives her such trouble because she can’t get it in a comfortable position. She also cannot keep a good temperature but is unable to...

Thank you for all the tips and advice! We ended up ordering from Lazarus. Hard to beat that discount!

Update: My mom found a mask that she likes and she is up to about 5 hours at night! All your encouragement, tips, and suggestions really helped. I know this diseases can be so cruel, but I’m so thankful that the ALS community is nothing but loving and supportive! Sending love and prayers to...

My mother has ALS and is interested in CBD oil, but we know absolutely nothing about where to go or what kind is best. We would love suggestions from anyone that uses CBD!

Yes, we have her urine cultures done each time. Her symptoms improve with antibiotic but the return shortly after finishing the antibiotic (a couples days to a week). It has been the same sometimes and other times it is a different pathogen. The last three times it has been the same. We have...

Mobility is limited but she can still walk with lots of assistance. She has lost function in her left arm and her right arm is very limited. She requires help getting to the bathroom and cleaning afterwards. She goes ever two hours. It doesn’t seem like she’s holding it and she says she...

My mother has ALS, and she is having reoccurring UTIs. We have increased water, increased cleaning to ensure proper hygiene, and added in some cranberry juice. I’m wondering if any PALS have this problem as well. We can’t seem to get it under control and not sure why they keep coming back...

Thank you so much for everyone's advice and encouragement! We were told that she HAD to use a face mask that covers her nose and mouth by the Trilogy representative that comes out to the house. Seems like we need to do a little more research and push back on this. She has said that she...

My mother has been using her Trilogy machine for the last three weeks. I think we finally found a mask that works for her. However, she is having some struggles. Any insight or encouragement for the follow concerns would be appreciated. 1. She hates using it at night. She wakes up panicked...