Recent content by Edward E

My wife has had an upper motor neuron disease diagnosis about a year ago. She has also had reflexes categorized as hyperreflexia. She has clinical weakness that has continued to get worse. She has wasting especially the wrist and hands(between thumb and hand). Recently I noticed fasciculations...

That may be how it got on there, with the intake. I did not think of that. A lot of people do not get how difficult it is to tell what exactly it is. They hear motor neuron and jump to ALS. Thanks for the help. Ed

My wife, 47, has had a diagnosis of Upper Motor Neuron Disease, along with dementia, and parkinsonism. As her caregiver for the last 18 months, I was stretched to the max. I had a heart attack 2weeks ago, and had to put my wife in a nursing home. During a family mtg. (at the nursing home) to...

I believe there is some "research" as they think the chances of having two rare neuro disorders in the same family must have a link. My insurance must have approved it as they would not be moving forward otherwise. I believe there must be some research/publishing money for her uncle and cousin.

This may be an ignorant question. My wife has been given the diagnosis of "Upper Motor Neuron Disease". She has three cousins that have "Rapid Onset Dystonia Pakinsonism". The neuro wants to do genetic testing on my wife, one cousin, and the parent who had the mutation. I do not know what...

Hello to all, and thanks Tillie for sharing your story, My wife, 47 yo, has been diagnosed w FTD and Upper motor neuron disease. We have a boy, 13 and a girl 11. By force of circumstance they have had to become caregivers. They have done an amazing job w this. They show caring and compassion...

Hello to all: The swallow evaluation went well. The doc did not see any significant issue's. He did note some GERD, and made the same suggestions you all gave me. Smaller bites, chew slowly, tuck the chin or turn head left or right.Our OT friend even suggested artificial saliva drops that helps...

We have the barium swallow study scheduled for Feb. 27th. Thank you all for the information!

Great info. Thank you all so much.

Yes. Thank you very much.

Hello to all Is choking part of PLS? Although my wife has been recently diagnosed as having Upper Motor Neuron Disease, it seems like she is "coughing" every time she eats. I tried searching to save repeating a question, but I can't search on my phone for some reason. Thanks to all

Thank you for the information. Very helpful. I do know she has a positive babinski. I do not know about the other test. As far as EMG I think that is going to be the next phase of testing. Thanks again for the help. Hugs and prayers for all. Very few understand this hell.

Just saw Neuro for my wife 47 hrs old. We have 2 kids 11 and 13. I noticed the summary sheet a section called diagnoses. It listed one of the diagnoses we knew,and some new ones. The new ones were Myoclonus and Upper Motor Neuron Disease. Is this just telling me that she could have any of the...

not a dumb question!