Recent content by ecutchins

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    Veteran's with ALS - Questions

    Quick update. My disability claim was approved and my first check should arrive next month. I've also been approved for healthcare. I have my first appointment with the VA ALS Clinic on the 31st. Things have gone smoothly so far. Really liked hearing everyones experiences.
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    "Make a sentence" game

    KHAKI Knit Hats Are Kicking It. Next Word enigma
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    Veteran's with ALS - Questions

    I've recently been diagnosed with ALS and I'm a veteran. I'm wondering what other Vet's have experienced with the VA. I'm working with a rep from PVA and she seems very positive and thinks I'll get my first disability check in February. I've also learned that the local VA Hospital has an ALS...
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    First Day of the Rest of My Life

    Hi Gary, Sorry you are here. I have weakness in both arms and hands with some additional weakness in my right torso. I too hope that advancements will find a cure or something that slows progression. I knew something was wrong in June of this year but looking back the symptoms started a...
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    First Day of the Rest of My Life

    I'm trying to get all my ducks in a row now. I'm a veteran so the nurse from the ALS clinic is hooking me up with a rep from the Paralyzed Veterans of America to start the paperwork for my VA benefits. I hope I'm able to work until the VA benefits start then I'll consider going out on...
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    First Day of the Rest of My Life

    I've made a few posts and got great feedback from members of this site. I was seen by a neurologist at the University of Minnesota yesterday. He had reviewed all of my medical records and test results so after a very thorough exam he told me that I have ALS. I have mixed feelings now after...
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    Why does everyone consider this a terminal disease

    Well let me throw my 2 cents worth into this debate. Firstly, let me say that I have not been diagnosed with ALS but it is still on the table as a possibility. I have spent the last couple of months reading everything I can find in order to educate myself. I had always said that I would not...
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    Questions to Ask

    Why does this have to be so hard? I'm frustrated beyond belief. The Mayo Clinic called and because they are out of network they can't do the pre-authorization for the IVIg treatment. I saw my family doctor and I asked her if there was anyway to do the infusions here instead of the Mayo and...
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    Coats - What Do You Wear?

    Well to put on a regular shirt is difficult at best. I only wear pull over shirts now and to put them on I put my arms in the armholes and pull my arms through the sleeves then I lay down on the bed and raise my arms over my head and get my head aligned with the neck opening and slide it over...
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    Coats - What Do You Wear?

    Love the Clint Eastwood poncho but getting it over my head would be a problem. I'm leaning towards a cape but I may have to find someone to make one for me. I searched online but the majority are just a little to dramatic for me to wear on a daily basis. On another note I did order a murse so...
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    Coats - What Do You Wear?

    Thanks for the suggestions. I thought about a cape but couldn't find one that was made for a man. I have a really hard time even putting on a regular shirt and have gone to pull-overs. I put my arms in then lay back on the bed to get my head in then get up and shake until the shirt falls into...
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    Coats - What Do You Wear?

    What do you do for a coat? I've lost a lot of movement and strength in my arms and as winter is approaching I need to wear a coat. I can't put on a coat or take it off very easily. I searched the internet and they seem to make things for people in wheelchairs but I couldn't find anything for...
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    Questions to Ask

    I had my appointment with the neurologist at Mayo yesterday. I left the appointment more confused than ever but there is a plan. The doctor still thinks there is a possibility that I have CIDP so I'll be starting IVIG as soon as the insurance precertification is done. The doctor said that...
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    Questions to Ask

    Well I had a very interesting trip to the Mayo Clinic on Friday. I went down to meet with physical and occupational therapy. I didn't know what to expect since I don't have a diagnosis yet. I met first with a doctor in the Physical Medicine & Rehabilitation department. We chatted a bit and I...
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    Questions to Ask

    Well the spinal tap is done and I have a preliminary diagnosis. The doctor thinks I might have CIDP because of high protein levels in my spinal fluid. I have to go back next for for an EMG and MRI. The doctor at Mayo is redoing the EMG because she has questions about the first set of EMG's...
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