Recent content by Eacz60

Hi, Anyone have any experience with PWC head control? I'm doing a home trial and finding it very difficult to line up with doorways. Any tips or suggestions?

Good luck Vincent! A fellow ontario pal, Evelyn

Don't know if it's standard procedure during the diagnosing phase to eliminate other diseases. I had it done after multiple blood tests, 2 MRIs and nerve conduction tests. Every test was negative. A 3rd MRI showed "abnormal signals". An EMG confirmed ALS. Good luck.

Way to go Canada! Very proud indeed.

I had breast cancer at age 41 in 2002 with 6 mths of chemo and a mastectomy. Had another preventative mastectomy in 2012 due to precancerous lesions. I can't prove it but I think the chemo triggered the ALS. I don't think it's just a case of bad luck. I believe we are born with 'mutant...

Hi Casey, would you PM me with details re: cost, mileage, year etc on the caravan you want to sell. I may go the turny seat route

Hi Elaine, thank you for the PM on CEP. How do I PM back with my email address? Evelyn

Casey and Elaine, what is the CEP program?

Hello fellow PALS, I need some advice based on your experience. I am using a walker at home with great difficulty and never without a spotter. I use a manual wheelchair when I go out and get pushed as arms/hands too weak to self-propell. Getting in/out of SUV is an ordeal. I am thinking if...

What a wonderful idea. Hope people in the forum participate. ALS awareness is lacking and photographs of ALS families will speak volumes. I live in Ontario, Canada otherwise I would participate. Good luck. Looking forward to seeing your final product.

Hi canmark, I have Dr. Zinman as well. So sorry about your aunt. I haven't been to the support group at sunnybrook though Myrna recommends it. I am west of Toronto so it is quite a hike to get to Sunnybrook. There is a group in Kitchener which I am contemplating. I get very emotional when...

Yes, I am in contact with a local Als chapter. I have received equipment from them. The bidet however is not something they have/loan due to sanitary concerns. I am currently looking to them for a lift chair. Hope they have one as it is increasingly more uncomfortable sitting on the couch...

Hi, Elaine I would also like to know where to get this type of splin

PLEASE Please list every amber stone evaluation. PROMISE

Hello, I have been reading posts for a few months without officially registering. Well today I decided to register and introduce myself and actively participate. :smile: I was officially diagnosed with ALS this past February at Sunnybrook in Toronto. I've spotted some fellow Canadians while...