Recent content by Dwest

As soon as we became nervous about transferring from chair to bed, we started using the hoyer lift for my husband Don. That immediately took away all stress of falling.

I understand there are wiring plugs. Maybe this is the case and it just came loose. And or a fuse.

I always regret not taking that one last vacation. 😢

What is voice banking?

I just want to say, you are so sweet for offering such an expensive piece of equipment for so little. My heart goes out to you. ❤️

Hello Dina. My husband was also diagnosed with limb onset. The only time he has suffered with his feet swelling, was from his blood pressure medication. Do the doctor switched it up and he hasn’t had any swelling since. Just a thought.

Isn’t it difficult enough to have ALS, or watch your partner or family member live with it, let alone having to deal with the cost of a drug and the paperwork? Can someone share if they have seen/ felt benefits of the radicava over riluzole?

Wishmobbing- all so very true. Your “rambling” response needs to be heard. As the primary/only caregiver myself, I feel all aspects of what you have written. My husband was diagnosed in our 25th year of marriage in 2018. We had plans. Then with this diagnosis, those plans just stopped...

@affected, No in the afternoons when he’s in his lounge chair with his feet up. It is a bit of work to put them on, but he likes them.

We use a similar unit to this one. My husband says it’s like an ongoing massage and it feels good.

Hello, my name is Darlene. My husband is Don. He was diagnosed in January 2019. We are in Grimsby ON.

Hi Steve. We live in a 2 story century home. Single bathroom 2nd floor. We had put up railings to assist my husband but stepping over the tub wall was beginning to be a struggle. Hence so were the stairs to get there. One day Don said,” I can’t do it anymore “. And on that day I removed the...

Hello, Can someone share their experience with the Radicava, how it is assisting and what stage your als was when started? Thank you.

We stopped going. The anticipation and anxiety of going, then to only receive notice that you’ve declined, is harmful to an ALS patient. All of us in here are trying to figure out why. What caused my husbands ALS? And everyone in here has individual reasons. However for us, we have noticed...