Recent content by Dvholmes

  1. Dvholmes

    Copper ATSM

    Attached is a posting from the MND Association website stating Phase 2/3 results will be reported December 2021. The trial enrolled 80 patients and AMX0035 had 137 in their phase 2 trial. After AMX0035 reported positive results the FDA told AMYLX to run a bigger Phase 3 trial. I’m really...
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    72EDE3A4-CAE6-432E-9CE0-255B56CC9EE5.jpeg

  3. Dvholmes

    Clinical Trials

    I’m SOD1 rapid progression. I’ve been taking part in the Tofersen trial with ASO for 11 months. It’s working to slow progression but hasn’t stopped it.
  4. Dvholmes

    Copper ATSM

    Has anyone heard any good news from people participating in the trial for CuATSM in Melbourne? if so, are they SOD1 or Sporadic ALS patients. I’m skeptical of all the positive praise in the media. I’ve found a few patient’s and none have experienced the kind of benefit people are hoping for...
  5. Dvholmes

    Arimoclomol

    Has anyone found anyone in this trial that can report a benefit? I've only found 1 person that reported a benefit. He claimed his twitches reduced and believes it slowed his progression. Any more than that? It seems we should be able to locate a few more given the number of patients and...
  6. Dvholmes

    Research Trial Debate

    Sounds like a difficult decision. I think I’d opt for the Healey trial with OLE. If you go on Stem Cell and it doesn’t work your stuck on it. If it does work you’ll then get cut off the drug at the end and then what?
  7. Dvholmes

    CuATSM Trial Participants

    Samkl, Do you know if he was SOD1? All the trials up till Phase II focused on SOD1. I believe (could be wrong) Phase-II intended to include those without SOD1. So maybe there is a SOD1 subgroup in this trial that it does work for and for others it does not. I did find 2 more that were on the...
  8. Dvholmes

    CuATSM Trial Participants

    The CuATSM trial is fully enrolled and we can expect results later this year. Has anyone spoke with anyone in this trial? I have only found 2 individuals in the trial and they’ve both passed. They were not SOD1 carriers and I wonder if that had anything to do with it. I have not found any...
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