Recent content by duster

I am exposed through work to hundreds of physicians, and there are a providers strongly pro- and anti- vax, as well as those who take a nuanced approach in consideration of patient age, overall health, and other conditions. If I differed with my provider only on this one thing, and was...

I don't often post but commonly read (at least part of) the posts from folks concerned about their health. In my view the mods do a great job of giving sound fact-based advice, and redirecting the people who oughtn't be concerned about ALS. To the point of the sticky notes, the journey to...

I've not heard this particular theory previously, of course we all try to make sense of causation. Of the factors Vivienne references above, my dad had five, plus genetic predisposition. I would have the same five -- time for me to do more research into this.

Oregon -- you pulled me out of lurking. Similarly, family history of ALS on father's side going back to great-grandfather, some folks go within a couple years and others have slower progression. To your point there's a fine line between body awareness and hypervigilance. I don't see as you...

Old Dog has a good perspective here. After fiddling around with local neurologists for quite a while, we got Dad to University of Michigan for a workup -- his initial diagnosis was motor neuron disease that appeared to be PLS. Dad hung onto that diagnosis like a life raft, even as the disease...

Another upvote for Bill's advice, above. My father had initial symptoms very much like those you describe, and refusal to modify his routine created both near-term and long-term issues. Near term because of the falling, and long-term because many accommodations work better if they can be...

As re: charges, many hospitals bill insurers the anticipated amount of reimbursement. There isn’t enough detail on the EOB’s to really discern whether or not that’s the case here. But Florida providers have a reputation for being, shall we say, aggressive.

None of us have been tested -- Dad insisted on managing his relationship with UofM without family involvement (after we got him there for a workup). Genetic testing advances continually, and frankly I've put it off waiting for greater discrimination in the results, but I am willing to...

All; First post....my father died three years ago from ALS (U of Michigan diagnosis), his brother died the year prior from ALS (U of Iowa diagnosis), their grandfather died from ALS (Mayo Clinic diagnosis). I haven't kept up as I ought as regards new or emerging therapies, I recall when Dad...