Recent content by DreamsEnd

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    I have to leave....

    I thank everyone past and present for all the information and support provided on this forum. This forum was my lifeline and best source of information. My love passed a year ago this October and it tears my heart out every time I come back now. I think I was numb for so long but it keeps...
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    Julie

    Dave, Proud of you! Sherry
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    Don't mean to hijack...

    This is the most touching thread. I cried for you Vince in Sadness, now it's tears of joy for you. Tillie, again you offered such insightful advice. It must be very hard for cals with pals with FTD. Love you all. Sherry
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    How can I not be a monster during the night?

    Jayswife, It's now 11 months sine my pals died of this awful disease and as much as I work on the guilt from the exhausted nights (and I was an exceptional caretaker, as we all are) the guilt of my grumpiness still haunts me. My pals was sweet until the end and I so regret my spillovers...
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    Tillie's Trees

    I loved the flyover tour. I often have imagined what your property looked like, now I feel as if I've been there! Sherry
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    Julie

    Oh Dave, Following your posts all through the trials and tribulations of Julie's diseases and your care have been profound and movingly. I LOVED your music choices and your videos. So sorry they can not be played at her service. You've been a carer, fighter and loving husband above and beyond...
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    My wife has been diagnosed with MND-ALS + FTD - Part 3

    That is the greatest news ever that the MDA ASSN kicked some butt on Julie and your behalf! Thank god for the palliative care, hospice and the CHC funds coming back. You did awesome and you never quit! Dave, be prepared for a huge crash on your part. Stay up with your doc and your meds. I'm...
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    My wife has been diagnosed with MND-ALS + FTD - Part 3

    It's unbelievably painful to follow this thread Dave. I can only say you're the most amazing cals and I send you strength! Sherry
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    My wife has been diagnosed with MND-ALS + FTD - Part 3

    You are and have been doing an awesome job, Dave! It's so sad that we carers have to be warriors too! Particularly when we're exhausted ourselves! "Palliative care (pronounced pal-lee-uh-tiv) is specialized medical care for people with serious illness. It focuses on providing relief from the...
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    Cough assist needed

    Hummmmm..... Sherry
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    Cough assist needed

    Bert, sorry it has taken me so long to reply. Invacare M14021120RA Ver. 0 If it would help, pm me your address and phone number and I'll ship it to you as a gift from my former pals. Sherry
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    Respiratory Therapy effective in PALS

    Wow! Kim, thanks! Sherry
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    Diagnosed with cervical radiculopathy 6 months ago - new symptoms - MND?

    Sorry you're here to join us. I would definitely see an ALS/MND neurologist asap. Very possibly you could get a disability approval quickly. Be sure to take records f all your other tests with you. Sherry
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    Cough assist needed

    Bert, I have a suction machine that is brand new but not portable if that would help, I can ship to you. Best of luck getting a cough assist ASAP. Have you tried ALS ASSN or hospice? Sherry
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    And So It Is...

    Lenore, Welcome. Your post was lovely and inspiring. Ther is always something to hope for. If I can suggest: do as much of your bucket list and fun times as you can. I loved your "up north", perhaps one has to be from the northern Midwest to recognize that, eh? Sherry
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