Sorry to learn your news, but it is good you came here for support! My husband's doctor is Dr. Lacomis at the clinic at UPMC, Kaufmann Building. He sees Lacomis for the Dex trial too, plus the VA Hospital for evaluation as a veteran. We really like Lacomis!!! Please, keep in touch...I think we can help one another with what is available in the area, and such. Both the VA and ALS/MD Clinic this month for all day type evaluations. So, I will give you an update! You are in my prayers!!! "neighbor"