Recent content by donnah

To those of you who are selling this used equipment. Most of us who have this equipment were fortunate to be able to afford it or our medical insurance was good enough to cover the cost or it was given to us (maybe not the automobiles). To all of you please, please consider giving it away. Pay...

GrampAl I read the article and watched your film God Bless you for always sharing........ I hope you enjoy this holiday season (and your grandbaby is as cute as a button) with your family Donna Caretaker of Ben New Jersey

Dear Pam, Hold on to hope, you did the right thing by diving into the treatment before everyone came up with "questions & concerns ". My Ben died 12/6/2006, he had ALS we knew in the end he had it because I fought tooth & nail for him to get the IVIG treatment. In the end we saw no improvement...

To all the PALS & CALS & MND people in this forum, This is my wish for all of us..... We all come from all over the world but we need to knit a tighter stich we need to reach out to others in our area to help one another. I have found out that my dear Stephanie wife caretaker and the most...

Phyl, I am so sorry for your loss. May you find a inner peace in all this, it will come I will keep you in my prayers Donna

Hello old friends.......I hope all are well. This thread is to help those who have lost a loved one, I have found that by helping another person (caretaker family member) with ALS and sharing my experience has help me allot. I lost my husband Ben Dec 6, 2006 to ALS over the last month I have...

Ben was first Dx June 2006 at the age of 65 second official Dx October 2006 died December 6, 2006. Now that was fast and cruel.... You never Know,

Hello my name is Donna and welcome to the forum. I live in Barnegat, New Jersey and my husband had ALS. He lost his battle in December but I still come here to see how everyone is doing. This is the best place on the plant to receive real answers to the problems that ALS patients have. We...

Hello Bebee, Just dropped a quick note to Jenny waiting for a reply. Do my best to be there and share my story. Let me know if I can help call me. Donna:-D

Hello doc my name is Donna and I recently lost my husband to ALS. He had problems with C4, C3, & C2 all were laying on top of each other. Doctor said he needed an operation (lumbar fusion) but.... 9.5 hours on anesthesia (please excuse the spelling) caused the ALS to become full blow operation...

Hi Gramp Al miss ya. I tried calling to give them a few things waiting for a call back. So in the mean time I thought of try to just give it away for free. I hope all is well with you and everyone else. If some one wants this chair just let me know. I'll say a prayer for all my friends here...

To all that read this thread. I live in New Jersey and would be happy to give yes give my husbands lift chair to someone who needs it. I know how helpfull it would be to someone who can not afford one. I guess Gramp Al could help me with giving this to someone in real need. I look at it every...

JMH Please accept my condolences. Your Dad is with my Ben now (died 12/6/2006 ALS) sharing stories and watching over us. I hope you can fing some comfort in that. God Bless you Donna

Hello to all. Been very busy, just checking in on you all. I hope all is well Love ya all Donna

Hello Beebe what kind of benefit for Jack? Please let me know if I can help in any way. How is Jack doing? Stephanie?