Recent content by DMHltd

Zots, Your situation is heart wrenching. I'm new here and don't have the experience as a care giver for a PAL that many others here have. But I want you to know that they will be replying soon and I hope they are able to help you cope. So sorry to hear about your brother.

I agree, there's a great deal of ambiguity in these terms. Have you read the sticky note at the top of the forum list about fasciculations? The fasciculations I get come in three flavors. One is a twitch of a muscle in the hand that causes the thumb or a finger to move back and forth. Another...

I'm sorry about your symptoms. I know how you feel because a lot of them are dead on with mine. The thumb/finger fasics, widespread fascics, left arm gets tired with minor use. I too worry about the weakness progressing too quickly. I'm older than you so it's grandchildren and older children...

I don't know how the SSA treats ALS, but my wife is on it (a paltry 700/mo). She has a terminal brain disease and they denied her first saying she could still work. She couldn't even drink a cup of coffee without spilling on herself. I was livid. I immediately appealed and gave them a big piece...

No, I've only seen a GP and a Neurologist. I'll seek a bona fide ALS clinic if/when I've got some more obvious and/or ominous symptoms. I'll post the results after that. Thanks Mark and Al. Dave

Thanks Al Actually, I'm driving a RYDER truck to Phoenix the weekend of Feb 16/17. Taking my 19 year old daughter to college (think $$). There's about six inches of snow on the ground here today. (Though, thats not going to impress a Canadian. :-D). Maybe it'll be nice out there. I'm not sure...

It's been said over and over that all people who eventually are DX'd with ALS had different symptoms at different times. This makes it difficult for us "nervous nellies" (as I've seen us referred to), to try and determine if what is happening to us is or isn't ALS. So you might say "Go to a...

It worked for me. Maybe it will for you if you give it another shot.

335.20 is the ICD9 (The International Statistical Classification of Diseases and Related Health Problems) code for ALS.

I think the "patients like me" web site for PALS probably has a good start at correlating the type of data you mentioned. It appears to me that that is their intention.

Where'd they start I've had some short lived twitches for years but they were never frequent enough to bother me. I know I've had them in the arms and eye lids for more than 20 years. After hearing how Michael J. Fox's parkinsons started with a twitching finger and after my thumb started...

Hi siuska Sorry for your symptoms. You seem to still have some sense of humor left though. If it was me I'd find the nearest ALS clinic and have them run me through the mill (if Ohio State isn't already one). Not that I think you have it because I don't have a clue even on my own situation...

Twitch location and frequency My left instep twitches the most. Some times it twitches and seems to hold in the twitched position for minutes at a time. I guess maybe thats a cramp, but it doesn't really hurt. What made me originally go to the GP was one on the lower right thigh a little above...

Feeling like things crawling on the skin I have the feeling of things crawling on my skin too. I describe it as if someone was taking a single strand of hair and drawing it across my nose or lip or cheek or somewhere. I also get single needle pricks in different parts of my body. I usually rub...

rilutek side effects I googled rilutek side effects and came up with this site. http://www.rxlist.com/cgi/generic/riluzole_ad.htm. I didn't read the whole thing so I don't know if it is what you are looking for. Hope its OK to post the link. If not it'll probably be gone from the post...