Recent content by dkiss

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    Right arm weakness and fasciculations

    Hello, I had my EMG examination today and the two doctors performing the exam saw nothing unusual. A weight fell off my shoulders. Still don't know what it is, but I have another appointment Thursday to look further. Thanks for your support! -- Dylan
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    Right arm weakness and fasciculations

    Nikki and Mike, Thanks for sharing your experiences. It has brought me some peace of mind for now. I'll try to stay off here until I had my appointments. -- Dylan
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    Right arm weakness and fasciculations

    Hi Nikki, Thanks again for your response. If I understand it correctly, even while knowing you could get ALS, you only noticed when you suddenly totally couldn't do something anymore? You didn't feel it becoming gradually more difficult the weeks before? Because that is what I am thinking...
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    Right arm weakness and fasciculations

    The day I posted my thread here, besides my arm issue, I also started having something in my right calf when walking. Again like it has to do more effort than the left one when walking. Yesterday and the day before I got quite intense twitches at times. They occur in my arms, shoulders, stomach...
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    Right arm weakness and fasciculations

    Hi Nikki, Thank you for your feedback. It's a little reassuring that you never heard of a C9 case at the age of 23. I know it would be really early, but my age still can't take my fears away. There are always exceptions, I think. Not good to think like that, but it's hard to dismiss these...
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    Right arm weakness and fasciculations

    Mike, thanks again for your reply. I see what you mean by the fact that I am feeling these things and don't have anything I can't do anymore yet. Although I have the theory that at some point you have some muscles in your arm still working and some not, which causes the working muscles to try...
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    Right arm weakness and fasciculations

    Hi Mike, Thanks for your reply. To answer your questions: it is definitely FALS. My father's mom and aunt have had C9 ALS too. I'm definitely considering getting tested for the mutation. At my previous neuro appointment, the neuro discouraged getting tested, because I did not have alarming...
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    Right arm weakness and fasciculations

    Hello, My name is Dylan and I'm 23 years old. My father currently has FALS (C9orf72) at the age of 46, which was diagnosed last year. This makes me having a 50% chance of having the same gene mutation. December of last year I had an episode of weird feelings in my right arm: tingling and arm...
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