Hello- My husband was diagnosed with ALS on Oct. 8, 2010. We saw the neurologist in early Sept. and on that first meeting he told us probable ALS. The testing that came after confirmed the diagnosis. In 3 month Dave has lost 25 lbs, muscle wasting in arms and legs, his upper belly stick out as he can't hold it in anymore. Last night he had a hard time catching his breath whe he came to bed. He can still use his walker, but he fatigues incredibly when just walking across the room. So- my question is this. I am concerned about the breathing. I can see his abdomin move up and down when he's laying down. We go to the ALS clinic in Mayo in two weeks and they will do the pulmonary function then. He has not had one in 3 months and that was at diagnosis time. At that time he was just slightly below normal. Can this happen this fast?? I guess that's my question. Sorry to ramble.. many thoughts today..
Thanks for listening..