Recent content by dian_na

  1. dian_na

    No you went on to post how my mother was able to respond and stuff you know nothing about.If...

    No you went on to post how my mother was able to respond and stuff you know nothing about.If your responses include my name in them or the mention of my mother then YES it is going to bother me so stop now. You post whatever you want about your dementia or Connies but when it comes to me and my...
  2. dian_na

    Fortunatly not all PALS is going to have dementia as you post. This is the second time you have...

    Fortunatly not all PALS is going to have dementia as you post. This is the second time you have done this, first time was on my post saying my mom was home and now on this post. You don't know my mom's history, to know what all has occurred so stop stating what my mom is or isn't because you...
  3. dian_na

    Palative care? And some..

    yooooo katie my grandmother was diagnosed by 3 diffrent doctors, she HAD dementia ok. Far more qualified then you are a mere personality on the internet. I need to truly quit posting anythng on this site ESPECIALLY about MY family And since you two chose to post in open msg I will as well. I...
  4. dian_na

    Palative care? And some..

    Connie you provided more info then the first post I read and agree with Mike that you seem to have a hold on stuff that I didn't see orginally. I am a serious advocate and in reading your first post I replied to what I read. Everyone's situaion is diffrent yet much the same. My grandmother who...
  5. dian_na

    May I have some help, please info Hospital bed

    Just ask him to add it, it will save you later of getting up to turn him and him being uncomfortable, pneumonia and bedsores. It will save your back some. To the doctor stress, movement, pneumonia, bedsores, sleep issues. ALso VA will pay for construction of a trac lift, it mounts on the ceiling...
  6. dian_na

    Palative care? And some..

    Katie it says Nuro Dr feels he has the als dementia as well as the other, as if it was done in passing. I know what dementia is. I also know what being told of this desease does to a person. One can't change the face of Dementia isn't going to allow him to not be mean to his son in wanting to...
  7. dian_na

    Help? Really?!

    Laura thats what I do when this lady from church visits, I go outside or go to sleep and turn the intercom off. My dad bought me a exercise bike, and I found a gazelle. I'm suppose to be doing that while watching tv ......... yeah right, but they are here when I can do it You know one home...
  8. dian_na

    Palative care? And some..

    First he was just diagnosis Jun 2011. If I told you today what you have there is no cure, get your afairs in order, would you not be pissed off. He's greiving for Christ sake. For right now evansmom this isn't about you, its about him. Your putting the cart way before the horse on this one...
  9. dian_na

    I hate ALS!

    Mom was one to always give me the keys, especially as she got older. But when she was having a hard time driving, she actually insisted on driving, I guess she knew it wouldn't be long until she couldn't. One day because my fear of course was for mom but other people. too I said one day it'd be...
  10. dian_na

    Trach no Vent

    look up noninvasive ventilator at unitedhayek dot com I keep trying to post this but hey someone don't think you all have a right to know. It is a safe alternative and is acknowledged by alsa
  11. dian_na

    Trach no Vent

    I don't understand why VA is doing that. But being in the arny for 22 years at times we never understood why they did a lot of things. I tried to post about this non invasive ventilator before and it was moderated off I guess, but its kind of importtant that people know it is available. I don't...
  12. dian_na

    mom came home

    I didn't type any of that to offend anyone. But my mom does blink in answers when she is welll rested, not always but never the less still does. I comprehend ALS more then I want to. I know for one she is still aware of everything, and my bet is even when she isn't able to ever again answer...
  13. dian_na

    mom came home

    My mom chose her vent, she still continues to choose her vent when asked therefore it is my resposibility to respect those wishes and that is exactly what I am and will contiue to do. Quality of life is a mindset. God will take my mom in time. In another forum I spoke of a doctor who...
  14. dian_na

    My Heart Is Breaking

    Kadian? I just got to thinking, you aren't crushing this with other meds are you? The capsule can be separated and mixed in applesauce or water if he has a g-tube but not crushed. Its meant to be extended release and if crushed he's getting all that at once which could be really bad. You prolly...
  15. dian_na

    Trach no Vent

    I have a question .......... who is telling you all you need a sleep study? They don't apply for those with ALS. I don't have ALS and had a sleep study done and I wake up 42 times an hour. The bi pap is used for non invasive ventilation because of a need for assisted breathing. It will give...
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