Recent content by DGret

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    Pain and fasics, 3 years duration.

    Saw the NM neuro this am - full exam negative for atrophy, weakness, or pathologic reflexes; conclusion- no ALS. MRI next week, shoulder consultation to follow. Thanks.
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    Pain and fasics, 3 years duration.

    I’m seeing him in person tomorrow. He hasn’t examined me in months and we agreed to an exam before we close this out. I’ve scheduled MRI scans of both shoulders, followed by a consult with a shoulder specialist. FWIW - the neuro said it’s not MND - he says MND isn’t painful (and I KNOW my...
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    Pain and fasics, 3 years duration.

    Thanks Laurie and Nikki: I would have thought with 3 years of fasics if it was flail arm, it would have manifest well before now and not with pain. I did a video visit with my neuro and he said not flail arm and not MND- he says no pain with MND at start. Are thee other versions of MND/ALS...
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    Pain and fasics, 3 years duration.

    I can’t see how it could be anything else except flail in that everything symptomatic is proximal, and only in the arms; that is, if it were motor neuron based, which doesn’t appear to be the case without what I understand would be dramatic weakness and atrophy, after such a long time. Thanks...
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    Pain and fasics, 3 years duration.

    It has now been 3+ years since fascics began and I started follow-up/surveillance with an ALS/NM neurologist. As I posted before, (here and here) 3+ brisk reflexes, negative Babinski, no clonus, no atrophy identified. Neuro has repeatedly said he has no concern about NM. However, I have...
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    How long to continue follow up?

    Laurie: Thanks for your thoughts. I think one of several points of confusion are the general assumption that BFS happens only in the young; that if seniors twitch, it must be sinister. I don’t know if that has ever been addressed in a definitive way. My thought is obviously to discuss with...
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    How long to continue follow up?

    (prev thread here) Have been followed/examined every six months or so since the start of widespread fasics now 31 months ago. Only finding was symmetrical +3 reflexes without clonus, negative Babinski’s, negative Hoffman’s. No clinical weakness identified over this time. (Datapoint: I am 72...
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    Onset in Shoulder?

    Not pandering, legitimate question. Peace. OUT.
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    Onset in Shoulder?

    One other question: I know there might not be full agreement on the fascicles and then weakness a long time later, and I have read the stickies. Based on your expertise and experience, would you expect that after 8 months of fascics, either muscle failure, classical hand symptoms or clinical...
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    Onset in Shoulder?

    Thanks to all. No distrust, simply that though I am a clinician, haven’t had much exposure to MND, and it’s various modes of onset. Appreciation and regards/best wishes to all.
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    Onset in Shoulder?

    Thank you. I suspect there is a disuse component, relating to failed c-spine disk surgery many years ago. Laurie - As you may see from my profile, I am a health professional, as I suspect you are. So can I ask again, is this a mode of onset for ALS? TYVM
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    Onset in Shoulder?

    Male -Medicare age Had a significant health scare in late 2020, which turned me into a health anxiety person. Later on, developed nonspecific calf twitching. Has been present off anon for several months. Saw my internist, normal exam. Saw a neuromuscular ALS specialist last week. Outcome: no...
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