Recent content by devropr

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    I live alone.

    Some more ideas to avoid choking: 1. As already stated, the PEG is ultimate solution. OUr ALS team advises to only use local anesthesia and avoid general anesthesia as GA can adversely effect nerves and hasten ALS progression. 2. Thick liquids are easier for the throat muscles to control and...
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    Tommy feeling sick

    One more item. They recommended cholesterol between 200 and 230. Apparently the higher fat levels protect the nerves. Anyway, we adjusted Sharon's lipitor dosage and raised it from 160 to 220. Above 230 increases coronary risks too much.
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    I live alone.

    Laura, I agree withprior posts that going it alone is not feasilble. ALS is difficult in so many ways, losing independence is one of the hardest, non physical aspects. Sharon, my PALS, has struggled with losing independence as much as losing use of her arms, hands, feet, legs, etc. I...
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    Wondering How Others Feel Weakness

    Sharon expereinced fqatique early and ven before her diagnosis [6/1/11] and it has persisted through the progression. Her case may have been accentuated by heart condition. Using BiPAP helps rejuvenate her, but only for short periods now. She can stay off the machine for 45 to 90 minutes...
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    Baclofen hair loss?

    My wife Sharon has taken Baclofen for perhaps 2 years. No noticeable hair loss due to it. Some due to being bed ridden 18-20 hours a day.
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    Tommy feeling sick

    Houton ALS medical team advised my wife, diagnosed 6/1/11: 1. ALS patients who maintain or gain weight live longer and healthier than patients who do not - hence calorie rich foods. 2. Take in a lot of protein. 75 grams per day. We've rarely hit this but emphasize proteins. 3. Get flu and...
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