Recent content by Desha34

Hi everyone. I had my emg this morning and it was completely normal. What has happened since my last update is an autoimmune parneoplastic panel was ran and I have an antibody that is 28% predictive of a cancer diagnosis. I had a chest, abdominal, and pelvic ct scan and a small 2.8 cm nodule...

Thank you both. I did try to get a sooner appointment but there is nothing until February. I just wanted to get advice about the foot thing as I didn’t know if having a constant visible twitch threw up any red flags. You all deal with terrified people in a very compassionate way and it’s...

Thank you moderator. I don’t think it’s an issue with the forum as my phone has not been loading pages properly today. I was just unable to get to my old thread.

Update with question, concerned. Hi. I tried to post on my old thread but my phone would not load past page one. If they need to be merged I understand! Basically I have had many symptoms, fasiculations, stiffness and cramping and some low vitamins. Bilateral brisk reflexes. Vitamin levels...

Thanks. I was trying to avoid getting involved in the google trap. It leads to bad things.

Hey guys, I don’t have any updates because my emg isn’t until December, I had no intention of posting before then but I just had a quick question. Can anyone clarify spasticity to me? I’ve been complaining about my calves feeling very tight every since this ordeal started but recently when...

I had a follow-up today with my neurologist at Emory. He found another vitamin that I am low on, B6. So he wants to continue supplementation for a while before further testing and is also referring me to a dietician. He did schedule the emg for December but told me to cancel it if my...

Again, I apologize. I’m just scared. I’ll go into my appointment tomorrow in the best spirit possible and won’t post again until I have some sort of update.

I’m sorry, I was just trying to say I didn’t necessarily expect someone to have an answer for me. I just thought I’d ask in case someone did have experience. I do journal everyday, so I’m not trying to turn this thread into my therapeutic ramblings. I don’t post every new symptom, that was...

I’m in a bit of a panic this morning. I woke up and decided to go for a walk, clear my mind, etc. I walked about a mile and when I got home laid back down to rest. My legs absolutely went crazy. Not the jerking spasms but the creepy crawly kind, all over. Felt like bugs were crawling all...

Thank you, I will keep that in mind when discussing medication with my doctor.

Mike, thank you for your reply. I totally get it about just getting up when you can’t sleep. Everyone tells me I “need to rest.” But I feel like it’s a battle when I go to bed. I don’t drift peacefully to sleep anymore like everyone else. :(. I deal with crazy symptoms all day and then I go...

Thank you. I am taking my 2 year old to Disney for the weekend soon so I’m hoping that’ll be a nice distraction. I will update after seeing my neuro on Wednesday as I appreciate the insight here. It’s hard for me to completely put aside worries about something more than this since I haven’t...

Thank you! I have been working on improving my diet since I was made aware of the deficiencies. I’m also looking into seeing a nutritionist even though I don’t think I’m that terribly unhealthy. I want to do all I can to feel better. It’s just rather hard to accept that a few low vitamins...

Just wanted to update. I ended up going to the Er and was admitted into the hospital for a night. I told them all of my strange symptoms and the factor that caused them to admit me was brisk reflexes. It is all of them, not just specific ones. During my time there they did a lot of blood...