You are all wonderful, thank you for replying. I'm sorry my experience wasn't some kind of fluke, like I was hoping. And, AKmom, "we don't work with people who have whatever you have" is, flat out, the most offensive thing I can imagine being told. I'm very sorry for that person's insensitivity...
AKmom, I'm sorry that you've had a similar experience. And yes, it seems that PLS is almost unfathomably rare. What a way to be special, right?
Thank you very much for your reply.
I'm not really in the mood for this. I did not ask a security guard or a dishwasher. I called ALSA. The only person with whom I had the opportunity to speak appeared to be unfamiliar with PLS, the MND for which I was seeking support group information. I am simply asking if anyone with PLS has...
Hi everyone,
I haven't posted much, so I'll restate here: My mom has a preliminary diagnosis of PLS after 2+ years of progressive symptoms starting in her left foot. She uses a wheelchair full time now, and shows signs of nerve denervation in her other foot/leg and slightly in her arms (EEG...
Hello Jessie,
I saw a post from you about your mom's negative outlook and really identified with feeling overwhelmed when you're made to listen to every miserable detail. Ugh, it's so hard. I sent you a friend request.
Gypsy
Hi Kim,
Thanks for saying hello--you're my only "friend" who has any idea what this is like, so I'm grateful you took the time. May I ask about your dad's symptoms/how long he's been affected?
Gypsy
Hello everybody,
My mom has recently received a preliminary diagnosis of PLS, but it's only been three years, and the neuros say they can't be sure it's not ALS until another year has passed. Mom's trouble began with a tingling in her toes on her left foot, and has progressed to the point where...