Recent content by desertcat6

I am very concerned about the type of care our veterans are receiving from the Department of Veterans Affairs (VA), and the lack of clear guidance and policy on the most effective ALS care protocols throughout the VA. Instead of being seen by an accredited multi-discipline care team most...

My doctor's replaced my knee a month or so before I was diagnosed with ALS. REHAB was tough, but worth it considering how stable my knee was for the 1.5 years I was able to continue to walk before my muscles failed.

Just saw this and want to participate. Trail of Cytokinetics CK-2017357 was not offered in GA. Email did not work... SCOTT JOHNSON COL (R), US ARMY EVANS, GA 770-596-3383

There are two A&A compensation levels - R1 and R2. Boils down to then need for skilled medical or unskilled assistance. Skilled medical assistance can be a caregiver trained by a medical professional to perform a daily requirement such as a physical or occupational therapy range of motion...

Awesome. Did the VA give him aid and attendance too? If not, you need to contact PVA and apply now.

It's been posted on WWP's, PVA's and DAV's FB pages by a few of us. Got to spread the word. Was very surprised to read that only ALSA bothered to submit comments in favor of the new rule during the comment period. PVA and all the other VSO organizations were silent.

Victory on one of my three issues. Final rule 2900-AN60 was published as VA regulation today. Specifically, the U.S. Department of Veterans Affairs published regulations that would increase from 30% to 100% the minimum disability rating automatically provided to all veterans with ALS who...

Exactly, but the point is they shouldn't have to fight both ALS and the VA. I approached ALSA with the ALS multi-discipline clinic issue. Instead of supporting the idea of getting the VA to fee base or establish multi-discipline ALS clinics, ALSA stated it was up to the individual veteran to...

Gulf War, Iraq and Afghanistan veterans with ALS continue to struggle with VA care and benefits. We need help to fix critical issues now. 1. Final Rule 2900-AN60 still sits at OMB while vets are being rated at less than 100 percent. 2. The Family Caregiver Program excludes vets with ALS, and...