Denny

That's great you are going to see your son...take it slow and easy, pace yourself. Have you thought of getting a scooter...? If you can afford one get the go-go because it is easy to take apart and put in a trunk. You might be able to get a used one. My scooter takes me everywhere so I dont wear out my legs...it saves my energy for things that really count! Have a great day with your son.

Denny hang in there....just love and enjoy your family....M e r r y C h r i s t m a s !

Hi Denny,
I am Kaye from Tennessee. Just wanted to say hello and today I saying prayers for you. Wishing you and your family a Merry Christmas... God bless you...
Kaye

Hi Denny
How are your coping? I cried all day. Some days are better than others! My older daughters take good care of me,they get so upset that I don't eat enough. Solid foods are difficult to eat. I hope to get a peg tube soon,I am now weighing 103,so scary. Every time I hug my 11 year old I cry. I need to stay strong and tear less for them. I used to give my smiles away, I would smile at everyone & it felt so good! I pray I find my smile again.

Welcome to the forum, Denny!

Hi Denny, thanks for your post. I am so sorry you feel the way I do right now. There are no answers I guess just acceptance of what is, we dont have a choice. Someone once said you can die with ALS or Live with ALS, our choice. It is what it is.
Love and HUGS, Di

Hi Denny, this is awesome...I used to hike mountains every chance I got...last year I could still hike, but no more...but I am determined to keep my attitude upbeat. There is always something to be grateful for...the moments of life are treasures, sometimes you have to hunt for them...Now the mountain we are climbing is ALS...rope up climbing buddy!

Hi Denny, Hang in there Babe!

Welcome to the Forum Denny! You can learn how to cope better with this disease, but when it first hits you it is awful....I try to stay in the present moment, and not go ahead of the disease and get all worked up about what is coming next. I try to be grateful for things like being able to see, and hear...you can work your attitude around so you are not so fearful. I think looking for things that are positive in life, and really letting them in, this helps me alot. Come visit the Happiness Now Thread (its on the Hope Thread) where we daily share with one another what we are grateful for. Hang in there!

I meant to type ALS has NO Mercy!

Hi Denny
I am new here is well. ALS has Mercy!
I feel just like you word for word.
It's so hard not to think about what lies ahead. How does one with ALS live each day to the fullest?
I am at my weakest, both emotionally & Physically.
ALS has taken my voice.....my daughters 11 birthday was on Dec13 and I cried because I could not sing "happy birthday to her!
I pray everyday for strength to be strong, to be happy and to wake up with a Smile and not tears.
Denny we have to be strong, let's not let ALS take away are love for life! ALS has taken too much already!

Tylenol and rilutek is fine, do it all the time

Hi Denny, you should be able to edit your message but not delete it. I still do messages to myself and go back and edit with something like "Oops, talking to myself again".
Take care, Barry

Does anyone know if you can take tylenol ( acetaminophen) and rilutek