Recent content by DeeMichelle

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    my son

    I'm so sorry for your loss losing a child is the hardest I feel. Wishing you comfort too.
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    ALS worry very scared

    Tiredness and stress can make muscles twitch. If drs confirm you are well and you cannot switch off the anxiety about als try a counsellor don't spend your time here searching for symptoms. Why do you think of als do you know someone who had it?
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    Familial ALS group?

    Thanks I may look into that its very helpfulx
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    Familial ALS group?

    We do not know what our gene is its none that are known so far my dad and at least 4 of his 8 siblings also my grandfather we suspect... I've just had my 50th and feel I've got to live it....
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    Nearing the end

    I don't come here so often now, but when I do I think of you Dani for all of the kindness you have shown others... I wish I could say more...thinking of you and wishing the 3 of you love...and I'm sorry for all Laurence and all of you have been through its such a long journey.
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    Walton and Johnson hateful remarks about Stephen Hawking

    Correction this should read- *'every brain cell....' Re: Walton and Johnson hateful remarks about Stephen Hawking Totally offensive, but hey- every *brown cell that they have between them cannot compare to the intellect of Stephen Hawking- he is a scientific legend who will go down in history...
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    Walton and Johnson hateful remarks about Stephen Hawking

    :x Totally offensive, but hey- every brown cell that they have between them cannot compare to the intellect of Stephen Hawking- he is a scientific legend who will go down in history forever for his genius. They won't even be remembered as the oppressive dick heads that they are.
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    50/50 Chance Of Getting Als, Would You Be Tested?

    I have FALS in my family- not SOD1 though. My Dad died from ALS almost 2 years ago and at least 4 of his siblings did. I do not want to be tested at present -I'm in my 40s now and in general I don't worry about it. Sometimes if I hear about someone having it my breath catches, but mostly I...
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    Familial als?

    To get familial ALS you inherit from a parent if your parents do not carry the gene you will not get it. It does not skip a generation and then manifest in the next. It's a dominant gene and if your parent has it you have a 50% chance of getting it or not. The only way it could skip a...
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    Our baby news

    Wow he's gorgeous well done with no pain relief! Congratulations so much joy and fun to look forward to. x
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    Dad passed away peacefully

    I'm sorry for your loss the grief will keep popping up even when you think your done with it. For it to have been peaceful is a blessing. Take care.
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    Our baby news

    Brilliant so happy for you both I don't come onto the forum very often now, but you are someone I still think of and I'm so pleased for you wonderful news. My new nephew was born today...
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    Not to do with ALS but amazing....

    Just want to share this didn't know where to post it.... Check it out it's really something different :) This is a link to Ukraine's winner of Got Talent and she truly does have.... Kseniya Simonova - Sand Animation (Україна має талант / Ukraine's Got Talent) YouTube- Kseniya Simonova -...
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    Diagnosis, work and life

    Danijela I also want to say thanks for your positive posts. I do remember initially googling about ALS and everything I came across was profoundly negative. You and others like you help such a lot. Thank you. x
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    Romantic Evening Ahead

    That's gorgeous good for you! Dx
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