Recent content by Dee Dee 0617

I'm sorry I bought it up. I can't seem to find my place here. Thanks Nikki for sharing, you're a wealth of knowledge. Lgelb, I get it you lost someone, so you think you know, you don't. I wanted to be just fleetingly hopeful. I was happy that there was even an article. Nikki got it, Spirit...

hi Lauren, I just got my feeding tube placed this past July. I was diagnosed November 7,2016. I am paralyzed from the shoulders down, and am completely reliant on my bipap. I opted to have the procedure done using local anesthesia only. It really was 15 minutes. I kept my nasal pillows in no...

I use a bedpan for all of my toileting needs. It works perfectly in bed, recliner, or wheelchair. Take an open diaper and slide the front portion of it into the bedpan, absorbent side up, slide bedpan under your person allow the back portion of the diaper to go over the front of your person...

https://ir.brainstorm-cell.com/2020-10-22-Catalent-and-BrainStorm-Cell-Therapeutics-Announce-Partnership-for-the-Manufacture-of-Mesenchymal-Stem-Cell-Platform-Therapy-NurOwn-R?fbclid=IwAR1IeqRv_fQN-qLMi0ZtHj6eP8NOfp6byLuNNnpBAmmrn792TuCRHMoAfdI Don't know where a lot of you stand where this...

It's a cold wet, gray day. Being paralyzed with no-one to take you anywhere. Truth be told where is there to go. I am usually so good about not getting stuck in the ALS mire, today it's too much. I haven't gotten out of bed in weeks. I made the decision not to be wrestled into clothes like a...

global - - Gentlemen listen ostensibly, boys abhor listening. ostensibly

well this has been something.

Hi Anna, I was diagnosed November 7th, 2016. It started with two fingers on my left hand. I am so sorry you're on this journey, but I am glad you found us. The people here are the best. We may not always have the answers, but we all have developed big shoulders to sustain each other. God bless you.

Welcome, I concur with everything that has been addressed in the other posts. The thing that jumped out at me, was your mentioning your walk. Please obtain a rollator, one of the major concerns is falling, it exacerbates the disease.

https://www.businesswire.com/news/home/20200902005945/en/Amylyx-Pharmaceuticals-Announces-New-England-Journal-Medicine

I don't have those selection options I have x, left click arrow, dbl click arrow, right click arrow, pause, keyboard, and three dots. Choose the dots and I get settings, programs, dock window, scroll up, scroll down, change selection bar left or right side of screen

My prayers are for our country and our people. Physical, mental, emotional, political, ecclesiastical, it seems we are facing one or more of these challenges daily. To think we had thought all we had to be concerned about was ALS. I was looking back at pictures from Woodstock 1969. I marveled...

I am so sorry you're going through this. Try taking your meds with applesauce. It is a little weird at first but it will go down easily. Please rethink the cane, falling exacerbates the disease. Be kind to yourself, be kind to your body. God bless you. We're here.

I'm right here my friend.

It has all been said. Every emotion given a word. You were my first friend here, you were real. I will miss you.