Recent content by Dee Dee 0617

So all day yesterday I would have sworn it was Tuesday.

You have a magnificent heart. Your Mom and Dad did a great job. The love and respect you have for your family is so evident in your writing. I made the mistake of not getting a feeding tube early on when it was suggested, because I didn't "need" it at that time. I also wasn't aware of why...

Thanks for the smile. Reading this as an observer was like watching couples tennis. Hello Bill, I am sorry you're here, but you are most welcome sir. And as I am sure you have noticed we have people here who have a vast knowledge of ALS.

I'm so sorry, husband can be such wonderful people. Keeping his weight stable is very important. I found dairy has been reeking havoc with my saliva. I now substitute dinner with non-dairy muscle milk. carbs in the morning and protein with vegetables at mid-day. I was scheduled for a feeding...

maybe we should invest in food flavored toothpaste? That sounds gross, but think all the flavor. Have a good night Karen

chronicle-- Cavorting harlots ruin orgy night, including chants lambasting experts. lambaste

I'm beyond over the moon, one of my favorite restaurants is opening backup. You have to pay w/cc over the phone and pick it up. They have a double door with enclosed foyer = zero contact. They are a lovely family. Spare ribs, ragoons, fried dumpling, egg fo young, pork fried rice, pepper...

idiotic - - Ignorant dolts insinuate only theocratic ideologies count. insinuate

Wednesday, sunny 44 degrees. Still sitting here watching the world go by.

President - - - People resent enforced sanctions in defiance establish neutral territories. Reactionary

Hi, I love the people here, they are so nice. I tend to get into trouble because I don't have a filter, or tact. First off I am 60 and was diagnosed 2016, and am currently paralyzed from the shoulders down. I was and am an extremely independent person. This was absolutely the worst...

Hi, I am very concerned about you all, still transferring to a toilet as you are getting weaker, and putting yourselves at greater risk of both energy expense and falling. I use a bed pan, in bed, recliner or wheelchair. We cut the diapers in half, trimming the excess plastic around the outer...

dispelled - Dying induces sorrowful pleas, embracing long life ever denied. Savagery

I can't stand any more. If you have mobility, it really is just a tube hooked up on both ends. I have no idea how it would feel walking because of its positioning. I use it when I am going to be alone for a few tranquil hours. My son took apart the switch on the machine and extended the...

I'm not sure If we're allowed to mention a product by name. I am paralyzed from the shoulders down. I use a bed pan when my caregivers are with me. I Saw this product on a pop-up add, I didn't believe it. I did some research and although it was pricey I made the investment and it works...

birdseed - Beginning interrogation rituals detective Swarez erroneously erased documents. Uniformly

I am probably going to get in all sorts of trouble for writing here, because I have ALS. I want to say thank you, God knows we couldn't maintain any sense of normalcy without you. I understand your concern about false hope, gimmicky products, snake oil salesmen, and soothsayers. Only you know...

Teasing silly. I thought it was adorable that you cared to ask. Rounch on!

Flatten--Flatulence lingers aromatically tainting the evening nosh. ( Kevin you're getting real close to a line) DOUGH

I'm so very sorry that you are worried. I can only say, what you have described is not ALS. Judging from what you've written, I would absolutely follow up with your PCP regarding anxiety medication, but put your mind at ease regarding anything related to ALS. Enjoy your children. God bless you.