Recent content by debwilson77

My husband had something along that line before we knew it was ALS, unfortunately it didn’t really help.

We just did this, wasn't hard and since my husband is now total care some of the questions didn't really apply. Ours took about an hour but she did say it went faster because of his care level.

My husband is a veteran so we get his equipment through the VA but for his medicare most medical people have told us to get regular medicare.

Good Morning, First off my Pals has a feeding tube and a supra pubic catheter, so the catheter takes care of the peeing issue. Our morning routine is too feed him in breakfast in bed, then I put him in a split leg sling and raise him up over the bed and put a pan under him for a BM. The...

I do it. I unplug the vent and put it on my shoulder. Usually from bed to power chair or shower chair. We have two vents, I keep one attached to his power chair and switch him from on to the other as needed. We do at least two transfers a day, on shower days more.

While my husband was still eating gave him high calorie smoothies.

My husband is trach and vented and with his physical and nurse we get him in some. Carefully!

Filled it out.

Not sure how to explain it but it kind of bounces around a lot, we have the nueronode now and it uses a different elegize system and works much better for him.

The dot to pick the letters moves a lot so it's hard for him to choose the right letter.

Hi, we are in Chandler also. My husband is completely non verbal but people act like he can't understand thing also.

There is a company called United Access that we bought our van from and they have rentals. They have a location in Denver and Colorado Springs.

We went a few years ago and my Pals did alright but got a stuffy nose which made him somewhat uncomfortable.

Thanks guys, it's nice but very un fortunate that there are people who understand. I am lucky in that we have the VA so no worries about money or equipment and that my PALS is thoughtful but even with that I don't think he has a full understanding of what CALS go through. Hard to complain...

I'm tired in so many ways and most of them aren't physical!