Debd4l

Hi Deb, welcome to limbo-land. There are lots of us here. Don't get me started on perceived vs clinical weakness. I think it's a continuum, not an either / or condition. I KNEW that I was getting much weaker and fatiguing easily. The fact that 1 doctor did not perceive clinical weakness and another did shows how inexact the clinical exam can be.

Personally, I have read about post viral syndrome. It sounds like sort of a "squishy" diagnosis to me, if you know what I mean. Kind of "let's make this woman happy and put a name on it but we really don't know yet" kind of thing.

Just my opinion. But I read up on the Dean clinic and it sounds like they have some good doctors there. I don't remember his name but I remember reading about the head neuro (Asian-American guy). He seemed like he had great credentials.

Unfortunately it's just alot of waiting. I won't tell you not to focus on it! How can you not?

Good luck, keep me posted.

Paul

How did your appointment at Dean Clinic go? Did you get any answers?

By the way, I read your original post. My ordeal started after a bladder infection and subsequent reaction to the antibiotic (Cipro). One week I was walking 10 mile hikes and the next week, I couldn't walk up and down my stairs.
Have you considered the possibility that you had a reaction to whatever antibiotic they gave you for your sinus infection?

Hi Deb, I am not familiar with Dr Dean. I was referred to an ALS doctor at Froedtert. He did a clinical exam on me (your basic test a cop would give you to see if you're drunk), ruled out ALS and at that point, he showed about as much interest in me as if I was a ham sandwich. I got in on a snow day (december 20th) because of a cancellation. His first words upon entering the room were, "Give it to me quick. I'm really busy today". If you had private messaging, I'd give you his name. Supposedly a good doctor but a horrendous bedside manner. I hope you have better luck with Doctor Dean. From my experience (3 neurologists), those guys are an odd breed. Paul

HI Deb..hoping you and I can talk somehow...I can help explain what is going on with you...The same thing happened to me about 2 and a half , 3 yrs ago....My email is [email protected] or u can friend me on facebook at https://www.facebook.com/MommyLondon..hope to hear from you soon :) take care