Recent content by dbw

Thanks for sharing your Mom's experience, Jellycat. The amount of leakage is hard to tell, but it at least wetted the gaze and part of shirt. The doctor just came over and changed the tube several days ago before the leak, because the old tube's balloon was deflated. Can we take some care or...

Harold, what did you do to make leakage go away. My Dad lately had some leakage around the PEG tube which made all the gaze and part of shirt wet. We try to change the gaze more. But the leakage keeps coming out around the tube. Thanks for any advice.

I read Beth's story on LA times web site this morning. It was inspirational. I have been reading Beth's posting on this forum for a couple of years. And my Dad saw the same Doctor at UCLA. Beth is truely a remarkable lady.

I know each PALS is different. But from my Dad's experience, neither Chinese herbal nor acupuncture helped. We tried several Chinese Medicine doctors in China, Los Angeles, and Florida. None of them helped to slow down the progression of ALS. To be fair, Chinese Herbal did help him relieve his...

Thanks, Joel. Looks like that it might work with a mounting kit. I will look into it. BTW, do you happen to know if anyone tried it before? Thanks!

I called our local ALSA chapter here. They don't have anything that meets my description.

Al, thanks for the link! I went through Joel's three devices. None of them helps for my Dad's case, since he can no longer move his head anymore. BrianD, thank you for your suggestion. Yes, something that can be activated by the eyes is the only option for this case. Is the eye gaze a part of...

I am looking for a simple in home alert or notification device for my Dad. My Dad is in late stage of ALS. He cannot move any his extremities, arms, hands, fingers, or legs, so push button type of device is not useful. He cannot talk or make loud enough sound. He could whisper in very faint...

Barry, thanks for the info! I will google to find a brush for 16Fr g-tube.

Thanks, kelly! I searched over internet for adult face mask and found some adult anesthesia face mask looks almost the same as the cough assist mask, $40 for a case of 20.

My Dad uses cough assist everyday to help him cough. We have to clean the mask several times a day. After a couple of weeks, the silicon seal gets harden and fails to fit and seal around the mouth. We use regular dishwasher liquid to clean it. Does anybody has good suggestion on how to clean it...

What is the web sites that BethU and BarryG bought the brush? How come I couldn't find the web sites? I looked through Bard web site, I don't think they sell it to individuals. Also what size is the brush? My Dad's tube is 16Fr. The Bard brush list on Bard web site is for 20Fr. Thanks for any...

Joel, I forgot to mention it. I am also working on that with the manage care company. It may not be easy. I have looked around. I don't think I have found a portable BiPAP with backup rate yet. Netty, I sent you a PM. Tom, thanks for the emotional support! BTW, does anyone know the make and...

Thanks everybody for the suggestions. I just talked to local ALS association. They do have one in loaner closet. The lady refused to lend it to me. At first, she said she need to loan it to someone who doesn't have one. Then, she said that they don't want to be liable for life or death...

My father have to use BiPAP machine (Resmed VPAP III ST) 24 hours now. I am worrying about how reliable the machine is. Do I need to buy a backup BiPAP for him? The first was covered by insurance. I think we have to pay out of our own pocket for the backup. Could anyone tell me where I can buy a...