Recent content by DBowman

Hello, AKMom......my PLS started out by being "Bulbar" with the slurring of a word here and there....now I sound a little lazy or drunk when I talk....it's like my brain thinks out words faster than I can SAY them so I have to slow down and talk in shorter sentences pausing after each one which...

Hi, LinCan! MY symptoms of PLS started in a Bulbar way as opposed to any other way although I use a cane and walker now. First I started to slurr a word here or there......then I had a little dysphasia (trouble swallowing.....actually it was more of an occasional throat spasm...of...

Hey there, Notme....When I had my second-opinion-diagnosis of PLS (at Johns Hopkins in Baltimore, Md in 2005) the muscle expert there (Dr. Corse)told me my prognosis was good and to take Rilutek (I took it that she meant my prognosis was good WITH Rilutek). PLS seems to be a "sister" disease...

I left a message to your post about fecal transplants and when I entered the reply it said the message would be posted when it was "looked Over" by the PLS people...I'll check back in a few days to see if they posted it to the thread...

Hang in there, Zaph....you've got a LOT of intestinal fortitude.....God Bless....

I think that an inversion table would be great for a LOT of things.....I have a friend who has neck problems and he gets great benefits from his inversion table.....If you think about it, straigtening your spine and letting the blood get in there delivering nutrients is great sounding...

I've never heard about that! I would say that a stem cell transplant (stem cells from cord blood and NOT aborted fetuses) could be promising....but....HOW did the article say a fecal transplant would be beneficial if one can make his own feces? I wouldn't want someone else's waste shoved up...

Hey, Barba'............. They'll check your spinal fluid to see if there's any evidence of MS.........with PLS your fluid should be OK. It took several years for them to diagnose me with PLS as with ALS things come on very quickly. Usually symptoms that take about 5 years to come on (like...

I used to run afternoons behind the local elementary school on their track after work. In the evenings I would then do aerobics or yoga. But after being diagnosed with PLS and having falls, weakness in certain areas and having to go from stumbling to a cane to a walker in just a matter of a...

A banana a day helps keep the cramps away...potassium ..........(Hail Johnny...)

I found both my types (3 and 4 wheel)of rollators at my local medical supply store.....I don't know what brand they are but they are good and sturdy...they had several models down there and I picked the one I liked and they adjusted it for me as far as height. Places that sell them will fix...

I've found that a Rollator walker is a valuable "work horse" for anyone that needs to use a walker. Unlike a metal walker, this walker device has a basket for carrying and storage, a seat if you need one (with the basket located underneath ) and bicycle handlebars and handle breaks. By...

Yes...I, too, believe in pushing oneself to MOVE ...it keeps that electrical connection active between your brain and your limbs...

Well, JohnnyL....I DO hope you are doing well and are happy. It's been quite a LLLLOOOONNNNNNNNNNNGGGG time since I was on this site and I see that you are still your incorrigible self!!!

I HAVE to tell you that your profile "pic" is AWESOME!!! Probably one of my FAVORITE Van Goghs......