dbltree

I found the dyno you have but found no price or where to order without filling out a history form. is there as us company selling these, if so what is their site?

Hi Paul.. Im Jon.. nice to meet you.. i'm lookin at the forum and saw your insights about the DP... how you doing with the Protocol.?.. it seems you are doing it strictly... hope it helps you on the long run...

Sorry about the trial...thanks for giving it a go anyway. Take care of yourself!

Hi Paul,

Reading your posts, the tirasemtiv doesn't sound as good as the DP. Are you still doing the DP at the same level you were before (along with the tirasemtiv)?

We did receive our supplements. Thanks so much for your help. Now, if I can just get her to actually start taking them! She will, but she is finding it to be a bit daunting at the moment. I'm hoping she will decide soon to jump in and get started.

Have you 'spoke' to derec? He is interested in trying the protocol. I gave him your email address, hope that's o.k. (anyone can see it on my visitor page anyway).

Wishing you well. You are the 'go to' guy for the DP, and we're all watching you with great interest.

Hang tough,
Steve

Hi Paul,
Hope you have a good week. Take care, Kim

Thanks Paul, thanks for your message, I will send you mail soon.

Hi Paul,
I am in the process of trying to obtain supplements. So far diagnosed with PLS, but ALS not off the table. I was wondering if you're on any special diet (e.g. Excluding meat or dairy, etc.)? Also, did you suffer any gastro distress or other issues initially? I know everyone's different, but I'm going to try this as there isn't much else and it may help
Hope you're continuing to improve.
Linda

Hi dbltree,

Great news, it sounds like. Glad to hear you finding some answers and some very good help (medicines). Just reading your posts today, 'pumpie' asking for your protocol......You could take the chance of giving her your personal email address like I am doing here.......as a visitor message.

It would show up only on her page (like this), but anyone who happened to look at her page could see it too, so.....that's up to you. I don't understand why they stopped your PM privileges, you're not a 'bad guy' like some of the nuts we get here. OR.... you could

Write to David again, and ask if he would reconsider reinstating the PM feature for you. Do you still have his email address? If not send me a visitor message, and I will send it to you.

I agree totally with you. If your new protocol is helping you, there is a good/great possibility that it could also help many others......or even just one other person, would be well worth the effort.

Hang tough,
Steve

Hi, Paul - was wondering how you're handling the Intravaneous part of your protocol. Thanks.

Hi Paul,
Just dropped by to wish you a Happy Easter. Take care, Kim

Hi Paul, I see your PM is still not working! I sense david hasn't been around lately. Anyway, I'm really hoping and praying that you get a better diagnoses! Happy Easter.

Hey there...just read your post re lems. Hang in there. I am keeping my fingers crossed that everything turns out for the better. Kindest regards

perineoplastic syndromes can come from hidden cancers--that are small! Which means treatable--Keep that in mind. There are several types that can cause it. Please ask specifically for a PET-CT (They can detect very small cancers) If it is LEMS--it falls under the MDA. Up to 60% of LEMS is NOT Cancer, though, so keep that in mind as well. But if it IS Cancer--it should be in EARLY stages!

It's a much better prognosis than ALS!

LEMS is frequently associated with known autoimmune diseases
Prednisone, plasma exchange (PEX), and intravenous immunoglobulin (IVIg) are effective treatments
Patients with LEMS but without cancer frequently have elevated serum levels of organ-specific autoantibodies

Here's a good link to wade through: http://www.penncancer.org/pnd/subpage.cfm?s=1&ss=2&sss=18#Test

I think his email is [email protected]

Hey! Just. Wanted to let you know that others are tracking their D Protocol at the patients like me site