Hi I seen that I meant a new post which got closed - sorry about that.
I could still REALLY do with some advice and thoughts please cause I am loosing my mind. This is what I posted. any info from people here who know the disease well will be much appreciated.
I posted a few weeks ago...
Hi people,
I posted a few weeks ago because I had seen a neuro who said that they were worried I could have MND, which got me really upset. I have seen another neuro yesterday who said he does not think MND but benign twitching disorder and he isn't sure what the previous neuro was on about...
guys thank you for answering and trying to reassure me, especially when you have lost someone or are battling this disease yourselves, it is really kind and I mean that.
I've read the stickies and I wouldnt of posted if it wasn't for a neuro telling me he thinks it is the start of MND, but as...
Hi Wendy,
it is very difficult to remain worry free when your life has been turned upside down by this possibility, but thank you. I am sorry to see you have been diagnosed :(. Were any of your initial symptoms like mine?
so you all really don't think twitching is anything to be worried about, even though its non stop?
With my mouth issues, no body has said anything and those who know I am worried say I sound normal.
I have started doing some of the tests the neuro did on me and ended up hurting my hand, I am...
Also would it affect my limbs at the same time? I read on here somewhere that its one or the other because the disease targets a brain area or something and the mouth part and arm and legs part are far away maybe?
Hi Tillie
thanks for your response I really appreciate it, and I am really honestly sorry for your loss.
I did trust the first neuro, he specialised in MS I think so I am not sure if that is a "neuromuscular specialist", I know MS affects your movement so maybe he is? The second neuro I have...
Hi Nikki,
thank you so much for your response. No I didn't miss anything out, I don't feel weak anywhere I don't think. I have found various grooves and ... dents? over my body but none have progressed and have no weakness with them and my GP looked at them as said it wasn't atrophy, just...
Hi people, I was wondering if I could get some advice as I am in a bit of a state since the neurologist I saw lately thinks this could be MND/ ALS, but from my reading around the internet and even reading your stickies it really doesn't add up fully, and I've been left in a bit of ... a mess I...