Recent content by david ray

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    Hello to all and strength and support to those in need. My wife Joyce passed away June 15th...

    Hello to all and strength and support to those in need. My wife Joyce passed away June 15th 2014.What a Soldier she was. We fought the ALS monster for over 3 years and we both gave it our all.I admire and support any persons caregiving for the Pals. it has changed my life.a new web site for...
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    Power Wheelchair

    Het there .Some how you need to give yourself a break. Being overwhelmed will only make things harder ,For Alll. I have over 3 !/2 years dealing with this monster and 1/2 are dealing the aftermath. My subconscious new the end was coming but I was able to push that thought aside and deal with...
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    Mom does not want feeding tube.

    Hello.My wife is the very later stages of ALS.Im sorry for your struggle.If I had it to do over I would have gotten her the PEG earlier.Before the peg she had started sleeping 18 hours a day.After 2 days on the Peg she perked up and had more energy.Im not able to add weight to her frail body but...
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    Als confirmed Jan 2014 Tons of Questions

    Hey there.My wife is in the very late stages of ALS.I have been monitoring her from the start.The twitches are all but gone now.the monster took them as it will take her.One thing for sure,I would have gotten her PEG sooner rather than waiting till she could not swallow her solid foods.I...
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    ALS in Costa Rica

    Hi. My wife has ALS and I would like to exchange e/mails and or phone conversations about this terrible disease.She is in the later stages,feeding tube,lose speech,ect. If you would like to talk please write me @ [email protected]. sorry English only please. David
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    hot flashes

    My wife has had hot flashes for nearly 6 months.She will be 60 in April. Its very uncomfortable for her.Any suggestions? Thanks
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    time for nursing home

    hang in there. I know how tough it can get.Let him make any decisions on his life.My wife is in late stages and I take care of her full time so believe me I know this disease very well.Its the hardest thing I have ever done but one thing has helped in an odd way.i let her make many decisions on...
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    Feeding Tube

    Hello.My wife and I moved to Costa Rica in July 2013.She has had ALS for 3 years.3 weeks ago we had the feeding tube procedure.What a great difference in her it made.She got to a point where she would sleep 18+ hours a day and could not even drink her Ensure.We would be happy to invite you and...
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    Slimy throat problem

    my wife has had a very slimy throat and we found a product that works great for her.i mean it has eliminated the slim by 75% we live in costa rica so I hope you can get it where you live. it called NISTAT, nystatin . its a heck of lot easier than suction and cough assist.good luck
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    ALS Patient becoming difficult

    Hello Stressed.My wife is in the latter stages and I take care of her. She wants to pass away at home and she will.can you make arrangements to have a daytime nurse and you possible take care of her at nite?Also my wife had the PEG procedure and since then with a high carb and high protein...
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    Ctci centre israel

    hello.My wife had steamcell trearment Jan.and we have not yet seen any positive results.the treatment was done in Mexico.We had a friend that had the treatment for his hip and it seems to have helped him.The USA can do this treatment with the fatty tissue of the patient.
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    hello good folks.Does anyone have a answer to the als patient not eating and wanting to sleep...

    hello good folks.Does anyone have a answer to the als patient not eating and wanting to sleep all day?she has started this for about a week.some days she will have a good breakfast w/no lunch and maybe a small dinner.i worried she is slipping away.
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    Just getting started as a CALS

    My heart feels for you.My wife is in the late stages now and cannot do any thing for her self.She was a marathon runner so we always stayed fit.Stubborn can be a benefit but also a determint
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    for my wife

    Thanks for the post.Shipping med devices are hard here in costa rica.i will do more research and get back to you. thank you and sorry for your loss.David
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    for my wife

    Hi. No my wife condition started with weakness in her wrist then her legs.Falling down was common,espiecaly when running.She now cannot do any thing for her self.She needs the Bipap machine 18 hrs. aday.I chop her food up fine and she can eat and drink but its getting harder for her.I truly hope...
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