Recent content by davegud

  1. D

    Leg cramps as a first symptom?

    tevs, Good luck with your neuro appointment. I would like to recommend that you focus on treating the cramps vs. focusing on the "cause" of the cramps. I was formerly obsessed with the cause of my cramping and fasciculations, however my testing repeatedly came back abnormal, but inconclusive...
  2. D

    New symtom. Concernd. Should I be?

    I was looking at old posts & was thinking how hypothetically sick it would be to post on your own thread as a different person.... No accusations here, but I couldn't resist the hypothetical speculation...
  3. D

    The undiagnosed predicament

    PS - My neuro is in Boston at BIDMC & I have a repeat EMG on Oct 11th. I'm extremely hopeful and expecting that the neurogenic changes seen in my original EMG as well as the mild clinical signs will remain exactly the same. Ever since I got the Smallpox vaccine in 2005 I have had a string of...
  4. D

    I'm back!

    Titling this thread "I'm back!" was like painting a giant target on your forehead... People who question their neurologist get slammed on here all the time, so what did you expect when you haven't even seen a doctor? I'm sorry that you have undiagnosed medical problems, I recommend seeing a...
  5. D

    The undiagnosed predicament

    Here's my layman's attempt to clear up the confusion for future generations a. Clean EMG = no fibs/ sharp waves plus no complex fascics in muscles with chronic neurogenic change = no LMN signs of ALS. b. No pathological reflexes, clonus, or spacticity = no UMN signs of ALS. c. No LMN or UMN...
  6. D

    The undiagnosed predicament

    Good to be back Trfogey. I mostly lurk now just to keep tabs on the latest news. I'm also reassured by seeing how silly some people can be (like I was) stressing over the same things again and again that their Dr. already told them not to worry about. On a side note: For anyone that wants...
  7. D

    The undiagnosed predicament

    Just to be clear, in my opinion...It is hard to diagnose ALS because they do not want false positives. Who wants to be given a death sentence & then have it reversed. Good in the end, but bad in the beginning. All possibilities must be exhausted before a diagnosis is given. Clearly there are...
  8. D

    The undiagnosed predicament

    This is a general comment about Awaji & how it applies to the undiagnosed: My Neurologist is one of the authors of trfogey's link. I have several muscles with chronic denervation/reinervation (big MUPs &/or polyphasic MUPs) + visible fasciculations (clinically seen, but not detected on EMG)...
  9. D

    New Symptom Question

    Trfogey, I appreciate all the work that you do on this site to keep people from unnecessary worry and anxiety. I do know exactly what you mean about the emphasis being on the vast majority of people who never develop MND. I have been doing mostly good with ignoring my constant cramps and...
  10. D

    New Symptom Question

    The testing he will do is currently being done in japan and europe, but not the us. It is supposedly less intrusive than emg, but slightly more sensitive. According to him it is only slightly more informative than emg in that it indicates the source of the hyperexcitability. The atrophy is...
  11. D

    New Symptom Question

    No dental work. I know what you mean about the neck muscles. My wife can't even roll her lip over without using her hand, so it is a maneuver that apparently not all people can even do. This feels like a real silly thing, so I'm trying not to overreact. But...it is without doubt a definite...
  12. D

    New Symptom Question

    Peripheral nerve hyperexcitability of undetermined cause. He does not consider this a final diagnosis, only a work in progress.
  13. D

    New Symptom Question

    Hello, In my previous posts I have indicated that I was tentatively diagnosed with PNH based on symptoms and repetitive nerve stimulation which produced after discharges and cramp potentials. My April Neuromuscular appointment was delayed, since my doctor wants to try out some new test on me...
  14. D

    Vaccine Related MND?

    stvhck, I had an adverse reaction to the smallpox vaccine in 2006 and wound up getting Medevac'd to Walter Reed for a brief inpatient stay. My immune system started to attack the lining of my heart (this was confirmed by elevated CKmb). I was a very healthy 32 year old man. I have discovered...
  15. D

    EMG Results

    Thanks everyone.
Top