Recent content by dartman

retiredmus2010 I just saw your post about mucous. I have bulbar onset als and am dealing with the same thing. I cant stand the cough assist. I use biotene. Cheap and OTC. It actually is for dry mouth but I find it tends to break up and thin the mucous in my throat. It gives me relief, albeit...

Definately hits home! I have bulbar onset and cant talk and it amazes me all the people I know (at work, home Family etc) that are standing in front of me and tell me to "give them a call". At first I laughed. Then it was more of a "Duh" stare. Now it just pisses me off. The als clinic still...

I take Nuedexta. When I started I could not see much speach improvement. Maybe it progressed slower. But it does help with emotional liability. I would cry uncontrollably watching the news. Started Nuedexta, twice a day. Then I became a stone. no emotion whatsoever. Cut it back to once a day...

Jellis My neuro referred me to the American Legion, as he said they are very good about helping get benefits etc from the VA. I met the service officer (his office is in the VA hospital here in CT) and filled out a bunch of paperwork. Within 2 weeks I got a 20 page reply from the VA stating...

Faith101 Sorry for your dilemma. It reminds me of my new favorite joke. I've changed it a bit to suit PALs situation. It's from "The Big Bang Theory" on TV. Stephen Hawkins, a physisist that has had ALS for about 40 years made the original joke. Question: What does ALS and a black hole have in...

Question. What kind of dog is that? It looks alot like mine. Bloodhound Doberman mix.

Thanks I'll check out that web site.

Thanks Notme. I'll keep your advice in mind. My problem with sleep is I can't seem to get there because of an overactive mind. Once asleep I wake up 3 or 4 times a night but go right back to sleep. I have noticed that I clench my teeth ALOT! Day, night, sleep or awake I always have a tense...

Thanks for the advice. I see HSC Tuesday for SLP. I'll ask about a pulmonologist and BiPAP and let you know Laurie. As for voice banking, I was looking into it. Mixed results so far. The voice I have now is not my voice anymore so its probably too late to do that, especially with the amount of...

Iglb Thanks for the reply. I have read (spied on) forums of all kinds for a long time and that was the first thread I ever started or replied to. I have been looking at the PBP site for a while. I just thought I should start in the "Newly Diagnosed" area first. I appreciate the kind words of...

I was told by doctors and neurologists that I have bulbar palsy, restrictive bulbar palsy, als onset bulbar palsy and progressive bulbar palsy. I wish they could get together and call it one thing. Is there a difference? The neurologist that specializes in MND called it PBP so I guess I'll go...