Hi Dani
We went to Bolton Hospice for a look, because we had a power cut a few weeks ago for over 5 hours and almost used up all our battery power, Hospice have said if that ever occurs again then we can go there to use their facilities, it was scary until it happens you don't realise how much electricity really matters and what you need to use to live, especially the cough assist, Lift etc, had to do manual vibration for an hour very tiring. At present he will not entertain any other carers what so ever, so will not go in Hospice to give me a break, he knows himself how difficult it is for us both, but i can't force him can I. His Peg was fitted about twelve months ago he was having feeds once a day but was having a lot of bowels issues so now refuses feed all together. Life is tough but I suppose it could be worse. How are you coping Dani I often wonder how hard it must be with Stan to take care of too, really I have it easy in comparison. lovely hearing from you . xx Ang