Recent content by Danielson

  1. D

    If you've had more than on EMG, how long between each?

    From what I've read an EMG can detect ALS signs even before symptoms start. I just did not get a concise definition of the terms used in my EMG. I thought the results should state "No MND". It does state "no evidence of anterior horn cell disease" which I guess is the medical terminology for no...
  2. D

    I'm back.....

    Thanks....so I should be happy I'm twitching or should I be afraid of atrophy once it stops? Thanks for the support and information. I hope I find the right diagnosis and treatment.
  3. D

    I'm back.....

    I'm giving the exercises a try but no help yet. If I don't get better I will seek out another orthopedic surgeon. They have not even looked at my lower back which is probably just as bad as my cervical area. I am feeling far less stressed since Txgirl explained my EMG results. That's such a...
  4. D

    If you've had more than on EMG, how long between each?

    It would have been such a relief if the doctor had told me that back in June! I think they lose compassion after many years of practicing and they do not realize that people worry about things like muscle diseases when the doctor uses a term like ALS or MS and then doesn't "dumb it down" so we...
  5. D

    If you've had more than on EMG, how long between each?

    That is awesome. I did not know exactly which term was related to ALS. Just that one little miscommunication is HUGE. The neurologist I see does not have a conversation with me. He just says what he has to and moves on. I will rest easier now. Thank you!
  6. D

    If you've had more than on EMG, how long between each?

    Thanks. My EMG was not normal as it showed something on my right leg as well. But someone here told me it was not indicative at all of ALS. The summary was: In summary, this EMG/NCV study is remarkable for mild neuropathic changes suggesting a very mild diffuse polyneuropathy. Otherwise, the...
  7. D

    If you've had more than on EMG, how long between each?

    Can someone explain why people are having so many EMG's done? I thought a clean EMG meant no ALS, even if you had the test before symptoms started? Are they looking for other diseases with these continued EMG's? This is what keeps the fear of ALS in myself and I'm assuming many others. Does a...
  8. D

    I'm back.....

    5 years is a long time! I'm glad you found the cause of your symptoms. I know I should be grateful that my diagnosis is leading away from ALS, but weakness and debilitating symptoms of any nature are hard to deal with. Thanks for all the answers and advice. My fascics overall are stabilized...
  9. D

    I'm back.....

    Thanks. I will try to do that. There is something definitely wrong, and I know it could be a multitude of things. I understand everyone's frustrations. I am 6 months into this and can still do most everything I could before. It's just more of a struggle! I spoke with a physical therapist...
  10. D

    I'm back.....

    Thanks. I will look up more information about it. My neurologist wants to see me again (next month). My wife thinks I should just wait and see what develops next, but I am missing out on life. The foot that constantly twitches has a noticeable dent in it now just below my big toe. I'm leaning...
  11. D

    Hopefully diagnostic journey over tomorrow

    So sorry to hear this. God bless you and your family.
  12. D

    I'm back.....

    I am worried that it could be ALS, but my EMG didn't show it. It showed polyneuropathy in my leg, but my weakness is in my arms. The Neurologist said he is 99% sure it is not ALS, but ........."the fasciculations are troubling". I was fine with the idea that my back was causing my weakness but...
  13. D

    I'm back.....

    No..I have seen a neurologist and an orthopedic surgeon. The neurologist states that my weakness probably comes from my back and the orthopedic surgeon says not. I want to pursue whatever is making me feel so weak, but don't know if that means seeing an ALS specialist or maybe another...
  14. D

    I'm back.....

    Thanks for the reply monster. I have never heard of that but will look it up. I do have high/low blood pressure, racing heart and low body temps. Meanwhile my feeling of weakness is getting worse and the fascics are also getting worse. Body wide but a constant twitch in my foot for three days...
  15. D

    I'm back.....

    Anyone? The weakness is really getting profound.
Back
Top