Hi Dane, thanks for your message. Actually I'm much better after 2 years of symptoms, worrying EMG's and a lot of uncertainty. My last EMG was pretty much normal (just fascics), which has been a massive relief. Since then things have gone uphill. I still have the burning tongue a bit, but it's getting a lot better (have you looked up 'burning tongue syndrome'? It is often linked to anxiety). My (constant) twitches have decreased and my joint problems are also improving. I'm not sure if this because I finally feel calm and reassured (also thanks to some wonderful people on this forum and the aboutbfs forum) or because I've drastically changed my diet since.. Maybe it's a combination of both. SO, no diagnosis, but some surprisingly successful self-healing...
I'm crossing my fingers that your EMG goes well next week! As many people here and my neurologists have told me, it would be highly unlikely to not have spontaneous activity on EMG if it were ALS. Best of luck to you!
I'm crossing my fingers that your EMG goes well next week! As many people here and my neurologists have told me, it would be highly unlikely to not have spontaneous activity on EMG if it were ALS. Best of luck to you!