Recent content by dancergymnast

Wow, you guys are great. Thank you so much for all of your help! It sounds like checking out some hiking sticks might be a good start for me. I do occasionally stay in contact via email with the first neurologist I saw (from way back when it was thought to be just a peripheral nerve problem...

Thanks Lauren! Your post was really helpful. Having a walking stick wouldn't be as bad as a cane, so maybe I'll look into that. I have problems with walking mechanics as neither of my ankles moves. So I can't really force a heel-toe mechanic, nor can I rock back on my heels or go up on my toes...

Good morning! (or Good night, depending on where in the world you are ;) ) I feel like I am finally getting somewhere in my diagnostic journey. I have "changed" my health care to a different region of Spain and after an appointment in general neurology, have been derived to the neuromuscular...

This happens to me too! Although I'm not on any medications to help with spasticity. Doctors wont do anything here til I have a proper diagnosis, which none of them seem interested in investigating...

Reading some of the posts in this series has been very helpful. Thanks so much for posting it. On a side note, looks like I won't even consider flying across the pond to Mayo at Christmas-time like I had been debating. This girl had just as much trouble with them as I've had over here...

Hi everyone, I am still stuck in a diagnostic disaster. I am an American living in northern Spain, and Spain has both private health care and public (free) health care. I started my journey in the private system because it goes faster and it all started with just an ankle problem. In June this...

So I was admitted to the hospital to have more testing done and to have other tests repeated. At the end, I was undiagnosed with UMND and rediagnosed with a possible psychosomatic conversion disorder. My doctor said that I don't have a clinical presentation of UMND (wait, WHAT?!) and that...

Hey everyone, Thank you so much for the support. I am going to see a neurologist in another state tomorrow, who works in a partner hospital of one of the leading motor neuron disease teams in Spain. Not expecting another opinion, but hoping to make a connection for possible future clinical...

Hi Suzannah, Thank you so much for your reply. I'm sorry to hear about your diagnosis frustrations, especially coming from top doctors. It's funny that you say "don't fall," because all of this madness for me started with when I broke my tibia in a fall. After the bone healed, I was left...

I'm hoping to make some connections here. Any other young UMN cases out there? By the way, I live in Spain, but I'm from Michigan.

Hey everyone, I was just diagnosed today with upper motor neuron disease. I have been sent to a different team of doctors to get genetic testing to rule out HSP, so if it's not that, then I'm looking at PLS. I'm only 28 years old, and from everything I've read about PLS, a diagnosis is...