DAME0212

Lets say in 3 months I'm diagnosed, what am I meant to say haha I told you so I do have ALS?? what if its another disease that is crippling or terminal?? when your not feeling well you can win, you jut have to go with the ride..... After onset I thought it was a temporary issues, after 3 months maybe a syndrome, after 6 months I knew it was life long, after 10 months I'm pretty sure im in shit!!!!!!!!! several doctors have told me to be confident of a turn around and I've been waiting for 1 year for that..... I have lost all hope BUT now I have to stay strong for my wife and children.... work as long as I can, spend the best time with them I can.

After 12 months I'm trying to get my head around the fact that there are thousands of terminal illnesses, and no one is assured tomorrow. If you didn't have ALS but instead had terminal cancer, would it matter what the disease was called?? I've been laughed out of every doctors office for the last 12 months. I had a clean EMG at 5 months... but I notice my body has lost alot of bulk especially around my wrists, elbows and ankles.... Do I think I have ALS maybe..... no body else does, but no body can feel how weak my arms and legs are, getting worse each month, twitching almost every minuite.

I know exactly how you feel.... I've been making an effort to say off the forum but failed today. I think it might be good if you try the same. This place isn't good for people like us ALS or not...... After 12 months of the worsening symptoms there is 1 question, 2 answers and the same advice for each answer.... Question - Do we have ALS??? two possible answers.... answer 1. yes, answer 2. no.... the same advice.... enjoy each day like its your last, cause one day you will be right......

Hi Dame, I'm in the same position as you and believe I have ALS. I feel that weak in my legs and arms, yet everyone says its not ALS. Like me you have to stay strong for your children and wife. I also suffer anxiety and know how hard it can be.... Stay strong and reply if you want to talk. The way I see it is we don't have ALS until a specialist tells us so no matter how bad we feel.