Recent content by DalekSec

It will be fixed soon: AboutBFS.com ? View topic - Why there are no new members?

Thanks James. Since Tillie kindly asked me to leave this forum, I will not continue this conversation. I hope my posts at least gave some reassurance to the new twitchers. Kind regards, Dalek

Yes, at the moment there are some problems on aboutBFS forum with accepting new members, so unfortunately many new twitchers end up here. I hope they will resolve this problem soon. Also, you don't need worry if neurologist didn't give you an explicit diagnosis of BFS. The only thing that...

Nuts and ECpara, thank you very much for your kind words. I would just like to add an update: Yesterday I had another EMG/NCS and this time everything was completely clean (I think 17 muscles were tested). After talking to the world's best MND specialists, once again I would like to reassure...

As Nikki said, a clean EMG means no LMN damage, hence no ALS. As I can read from you post, it seems that you likely have BFS (or some kind of PNH), and the muscle pain if one of its main symptoms (see Benign fasciculation syndrome - Wikipedia, the free encyclopedia). As you can see from my...

Hey guys, I just wanted to write an update of my today's visit with prof. Hardiman. Here is a brief overview: Her assistant neurologist did the usual clinical examination and she didn't find anything concerning. I also showed her the "atrophy" in my right thenar eminence. She said that...

Sorry for hijacking your thread, but I exactly know how you feel. After one of my EMG's showed signs of chronic denervation, my neuro told me it is most probable from my back. When I was collecting the results of my MRI's, the nurse politely smiled at me and said that everything was clean. My...

P.S. alex34 and jram303: I am sorry to hear about your health problems, but since I am not an expert in neuromuscular diseases, I can't help you much at the moment.

Well, to be honest, it depends on the definition of luck. I will find myself lucky is she says it's not MND (or anything else dreadful). But, on the other hand, yes, prof Hardiman is one of the best experts in Europe in MND, so I am very grateful to be in her hands.

Thank you very much for your insight Nikki. Yes, it's Prof Hardiman alright. :) I try to stay calm and positive, even though it's not easy at the moment. But that's life I suppose... BTW, I enjoy reading your posts, they are so kind and rational at the same time. I am also deeply sorry about...

Dear members, First of all, I would like to say that I admire PALS and CALS in their constant struggle with this dreadful disease. I also hope that some proper drug will be found and released soon. I would kindly like to ask you for and advice regarding my symptoms I have read the stickies...