Recent content by daigs

thank you all

ANYONE KNOW WHERE I CAN GET A USED Vertical Platform Lift

NEED A Vertical Platform Lift ANYONE KNOW WHERE I CAN GET A USED Vertical Platform Lift

Hi everyone. I have not been around for a while and I am sorry. I hope everyone is doing great!

What drug are you taking?

I just started that drug! I am going into week 2. The side effects from the first week were very funny. It was like I was drunk all the time but with no hang over! I would say things without thinking and lets just say some friends and family turned red. Now, I find my muscles are actually...

I'm a lot younger than your dad but I understand where he is coming from. It is very scary for your dad because last thing he wants to think about is leaving you. I have agreed to a feeding tube because I can still eat with it. Trach I'm on the fence. if I'm in a wheelchair and can still...

Hi everyone! Well I took my first does of CK-2017357. So far so good, almost lol. It causes balance issues which is great because I already have that lol. Well I had my solid wood closet doors open and I lost my balance and landed head first into both doors causing them both to fly off the...

Hi Anne I'm so sorry you have to join us here. I am new here as well and have gotten some great support on difficult days. It's great because everyone here understands your thoughts and feelings. I hope you have doctors that really understand the disease. We are here for you!

I'm being enrolled now. Just waiting to make sure my blood work comes back ok.

Thank you!

I understand! I vented last week. I believe it was Vicki who stated it was better to vent here and she is right. I'm so sorry things are moving so fast. Have you thought of the experiment drugs? Stay positive Patrick, we are all here for you.

Thank you all so much. Thank you for assuring me I'm not alone in my thoughts and it's normal. I am so happy I found this forum. I do have a wonderful family and friends. I have a close friend who is no longer around but that's ok, they just don't get it. Thank you guys/gals again.

Hi everyone! I had a man by the name Ron Hoffman come out to my home and help me plan for my future. He is a wonderful man who helps those of us with ALS make safer homes and get free equipment. I live at my parent's house, an in-law apt that is over the garage. Well, we have a lot of work...

I'm so sorry you are dealing with this. I hope you can find some answers.