Recent content by CutieHootie

Good news :) My husband doesn't have the faulty gene so he won't pass it on to any children. We are extremely relieved, was prepared for the worse to be honest. It's not over though, still worried about what the future holds for the extended family as his brother had 3 children so they are...

Thanks for the kind words, I'm feeling a bit stronger today. I shall look up this facebook group, thanks for mentioning this. I shall keep you updated with the results

My husband has a history of mnd in his family. His mother, auntie and brother having all had this horrible disease and sadly passed away. I think his grandmother also had this disease. They have identified the gene alteration that is causing this in his family using his brothers DNA; its FUS. I...