Recent content by CuriousGirl

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    Applying for Social Security Disability

    i was denied 2 times…because i didn't have enough social security credits per quarter. i now have an attorney and waiting for a hearing date with an administrative law judge. so just having als does not guarantee anything.
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    Crying more

    after 6 years, i'm still functioning but my symptoms are quickly increasing i cry because i'm single and I've alone. i cry when i let myself wonder how much longer i can live independently. i'm still able to make fun of myself and have a chuckle. but no laughter. there must be others out...
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    What are you reading? (In memory of Allen (trfogey)

    i admit i'm never been a reader of books. when i'm stressed, i watch television. but, i just began the 1st of the left behind series. i have to say, i've been searching for something like this for a very long time. i'm hoping this'll do it. i just wish i had something to hold the book open...
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    should I really have been diagnosed with ALS?

    a follow-up call? i tried that today, but via email. it was regarding my appointment 10 days ago in which my als diagnosis was recinded.(symptoms began 6 years ago) 3 hours later, all i received was a reply from staff telling me to make another appointment. or go to the next clinic (all day...
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    Gluten Sensitivity Test

    go to the celiac.com forums
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    Gluten Sensitivity Test

    my endocrinologist sent me for a blood test when i was complaining of stomach problems. it was positive. i'll see if i can find the name of the test. then i went to see a gastroenterologist. had an endoscopy which showed all my villi were flat...so this may be an alternative test if you can't...
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    Where is the ONE website....

    Hi mediasmart! thanks for your reply...made me giggle...especially your signature. i admire your sense of humor. if i didn't have one, i probably wouldn't still be here. i wish you well.
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    Where is the ONE website....

    ....for PALS, Type 1 Diabetes, Celiac Disease, and Colitis? I know it doesn't exist. I'm just trying to lighten up on this Christmas Eve. Tell me something funny! What more could a girl ask for?
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    Do all ALS people have to get a PEG?

    so if you don't get tubes or any kind of life support, then what happens? i was looking into oregon's "dying with dignity." i recently watched a documentary on taking your own life legally with a doctor assisting.
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    ALS or cervical stenosis?

    the stenosis is severe per my neuro doc in C2-T1 plus lots arthritis. this could be causing the atrophy that began in my left hand 4 years ago. it's in my right now. wrists are weak continuing to atrophy. my arms are weak up to biceps. i'm so tired after any activity i feel like i weigh a ton...
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    hi. i just have to get better at learning how to get around on these forums. i learned how to...

    hi. i just have to get better at learning how to get around on these forums. i learned how to accept a friend request yesterday and now just saw this. thank you for your interest! i don't come here often. guess i'm still in denial? just posted yesterday asking a question, but can't find my...
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    But my reflexes are good ...

    ...and i have no pain. i don't know which thread i read (hey, i'm a poet) but it was about als/mnd and NOT having any pain and my reflexes are good and my senses are good. 4 neurologists din't want to confirm diagnosis because of it. also diabetic 30 years, neuro's and endo dont know if it's...
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    btw, i see you just joined. are you well?

    btw, i see you just joined. are you well?
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    hi...thanks for commenting. i didn't mean to sound *****y about the # of views to the # of...

    hi...thanks for commenting. i didn't mean to sound *****y about the # of views to the # of comments; just feeling alone through all this. thanks for noticing me, jlynn6212. the things i listed are difficult to do...again trying to change to a "glass is half full" person...it's not too late. i...
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    A wee bit worried about Poet Chris

    my new friend chris. i wish you well...
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