cubcake

Hi Shelly, I don't come here much at the moment. It's 12 weeks now, Im so lonely for him. He was mine. Im so sorry you are going through this too, and I dont know what to say to make it better only that I think of you often, and I wish I could wave a wand for everyone in this boat..
Boys are getting on with life, they have to, I have to get a job..SCARY...got to stop the blubbing too!!
Sending you my love and hugs...thanks for thinking of me. Take care...Mair xx

Just thought id also say i hope things are going 'better' for you both. Am always amazed people find the time to post when they have so much on their plates. Have thought of you since i read your post about things taking a turn& hoped things were ok. 'See' you around!

Hi Shelly, how are you both going along? I haven't been here a lot, I have been finding the floor in my spare room, my youngest lad has come home for a while, the other one has moved in with his girlfriend. Hoping to get some sense from medics soon for him with his back. He is getting on with it, no option really. I think of you often, I hope you are getting enough rest and some help with Fred. Love and big hugs, Mair xx

Thinking of you Shelly. You are in my prayers. Kim

Thinking of you, Shelly, sending hugs and love your way xxx

What a heavy load you have Shelly, it's said God doesn't give us more than we can bear, you are a good strong lady. Don't let anybody tell you differently. Thank you for still thinking of us, I miss him so, 8 weeks on Saturday, I think of you all every day and 'talk' to someone? I must be learning to pray cos I ask you all have strength to carry on and deal well with what comes as time creeps on, and the harsh realities of this foul disease are faced. I hope you get good solutions from the court, you surely deserve a break!! big hugs..Mair x

Hi Shelly...how's things?
Think of you often..
Mair xx

Hi Shelly.
New Year coming at us...
Sending Peace and Love to you both..
Hugs, Mair xx

I so get it Shelly, the Clive I knew went the day his diagnosis was confirmed, that was back in June, it has been a lonely road..The Christmas days have passed, kids have been funny, excited, big and little ones I might add..There's been too much food for me to deal with, I'm lonely but it's bearable..and I get more warm comfort from friends I've made because of the als than from my friends and some family here..because they 'get it'..
Waiting for new mri/xrays for my son, he's got bad trouble with his back. Heartwrenching seeing him in tears with the pain.
Keep strong Shelly but be gentle with yourself, you are doing what many people couldn't...
I think of you often, and send you hugs full of love to help you through..
Mair xx

Thinking of you just now Shelly..
Thought I'd tell you
Hugs Mair xx

Thinking of you Shelly. My dad is doing so-so. He quit taking his Ritulek because he felt it wasn't doing him any good. He is losing strength in his arms and hand now which is frustrating him. But, he is basically in good spirits most of the time. He is glad to be back in his home now and loves seeing my kids. Take care you are in my prayers, Kim

Fear not, Shelly, you write anytime you want..won't drive me nuts..I raised four kids!!
Got a handrail in the bathroom? When I got scared for Clive walking, we had a commode in the living room next to Clive's chair. More room to manouvre, less distance to cover and less obstacles..I tried to simplify life for us both as much as possible, he didn't like the changes but we did what we had to to cope.
Taking my youngest son to see a bone doctor tomorrow for his back trouble, hopefully get some sense..
The other one has an inhaler and a peak flow meter, got to keep a diary and go back in a month, he says his pipes feel a bit clearer so that's good.
Christmas will be strange this year, my very first one to wake up alone here as all my kids have moved out now too.
No dinner to prepare as we are all going to my eldest daughter. Guess it will be tea and toast and walk the dog and a relax in the bath-tub..how odd that sounds..
I pray you both keep well..love to you both,
Mair xx

Hi Shelly,
Thinking of you today..dropping by to say Hi..
Wishing you peace and sending cotton wool hugs..
Mair xx

Shelly..as always, you found time to write to me and it means so much more than you know
My boys are okay, the eldest had his breathing test Monday and fared better after using an inhaler so that tells him something but official results are next Monday. The youngest has been here with me all week, I dont think the girlfriend approves, but she needs to realise he may not be able to continue to dote on her as he has to put himself in the frame now..and it is causing some friction. We asked for a private referral for him to be seen quicker - waiting list is 6-9mnths - so he could have an appointment anytime soon. He's having trouble accepting his life may be governed by his health in future..who wouldn't?
I wish I'd popped my kids out in such short times..on average 12-18hrs..I saw all 47mm of new grandchild at first scan Monday, eta 27/6/13
Life does indeed go on. Lots of love and take care of you Shelly (I know, easier said than done)...M xx

Thinking of you Shelly. My dad is back living at his home now in the same town as me less then a mile away. He is now losing strength is his arm and can only use a few fingers on each hand. It is really frustrating him. He is still eating on his own and has a good appetite. He is worried that it will be soon that he won't be able to feed himself. Most of the time his spirits are good though. He is so thrilled to see my kids after being gone for so long. Take care, Kim